[cait91]

Hello everyone! It's so amazing to see how many people other than me have this disease. At times i have felt like i was the ONLY one in the world going through this.. I was 19 (now 20) when i first started getting my symptoms of my MG. It started out with my tongue getting extremely weak.. at times i wouldn't even be able to talk, you couldn't understand a thing i was saying, i was also getting double vision (but i thought i just was in need of glasses). I also was extremely tired ALL the time and my social life, as a young adult, was quickly diminishing. Before MG i was extremely social and as you could imagine going through the symptoms like not being able to smile correctly or make a laughing face(due to weak facial muscles), or converse in conversations with my friends was very frustrating for me. I became depressed and thought I was going to have these awful symptoms for forever. Just recently my neurologist came to the realization that MG is what i had. I had gone to every doctor you could think of and every medicine possible and nothing was working. Finally i was prescribed to mestinon and within an hour my big smile was back, i was talking normal and clearly and i had energy again! it was like a miracle drug... but i have noticed that after 3 hours or so when it starts to wear off i can feel my tongue and face getting weak, that's how i know to take another pill at the 4th hour. I have gone through 6 months of the torture of not knowing what was wrong with me and now we finally know. Im not thrilled that I have an autoimmune disease but i am relieved to finally have answers and treatment options. I have my first IVIg treatment this coming friday and im nervous but excited to see the results of what could be. I mainly just posting this blog to get what i have been building up inside of me for the past 6 months and maybe this will help some of you know that you're also not alone and others are going through the same pain in the *** symptoms as you!