My daughter had a very difficult week. She became so weak that she couldn't walk, swallow, talk, etc. All of this exacerbated a day after her first IVIg treatment ended. She ended up in the Neuro critical care unit of the hospital for 4 days (just released yesterday). Upon admission the doc told us that she shouldn't have been taking benadryl because it is contraindicated with MG. She said it was a big No, No. We didn't know that since this is a new diagnosis for Caitlin. She had been taking it at night to help her sleep. It may have been aggravating her MG even more. Has anyone else heard of this? The pharmacist in the hospital gave us a list of drugs not to use if you are MG on mestinon, and benadryl was NOT on the list. This is confusing.

A friend told me that she can't take Aleve because it affects her throat and she can't swallow (she doesn't have MG). Does anyone know if Aleve can make swallowing difficult for MG patients? My daughter was taking Aleve for the IVIg headache.

Sarah