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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-14-2012, 09:09 PM | #21 | ||
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Elder
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Thanks music junky for sharing your results. I do care. I will have to look up that one test as I hadn't heard of it before. Sure hope you find out something soon. ginnie
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01-24-2012, 06:30 PM | #22 | ||
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Junior Member
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Ok, so interesting week. I am not sure if I said this in my previous post but, I had a test come back stating I have inflammation in my body. The rest of the tests are either negative or haven't come back. I still have 6 tests left to come back. That said I went to physical therapy and the therapist said I have drop foot. The neurologist ordered a brace and they think I will be able to walk without a walker using the new brace!! I also began speech therapy today. I had two therapists looking in my mouth when I started to have one of my episodes. They both stated they saw tongue fascilations. They both also wanted to know if I needed an ambulance as it made both of them concerned. I let them know this is what has been happening to me everyday for 10 weeks. It's the first time this has happened in front of medical personnel. I am so glad it did because they documented what they saw, and faxed it to both neurologists. A nurse friend of mine was thinking it might be a simple partial seizure. I am so hoping to have a diagnosis soon! Anyway, that is what I know for now. They fitted me for my brace and it should be here in a couple of days. I am extremely excited to walk better!!! So, my mood is up!
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01-24-2012, 08:11 PM | #23 | ||
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Elder
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Glad to hear you are walking better. That brace seems to have made a difference. It was also good that a medical person saw what was going on with you. That fax to the doctor is going to give him help in your diagnosis. I sure hope they figure the rest of it out. It is also nice to hear your mood is a bit better. I think just knowing someone saw the problem is a relief. Have a good night. ginnie
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"Thanks for this!" says: | Musicjunky1 (01-25-2012) |
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