I've had progressive swallowing issues for 7 months. For the last 4 months I've been on thin liquids.

I had a modified barium swallow month or so ago, but refused the solids. The liquid swallow apparently looked normal, even though I found it difficult.

Since then I've experienced increasing aching and fatigue of the tongue and swallowing muscles around the Pharynx (slightly more on one side than the other). Talking is hard because the tongue and throat gets fatigued, achey, and 'stiff'.

I've been examined by an ENT, and a neurologist who specialises in ALS/MND and also had a nerve conduction study and EMG done which were apparently normal.

I often feel if I did some of the tests again, particularly the modified barium swallow, I'd fail it.

Its got to a point where even liquidised soup is difficult - the swallowing is slow and weak and gets worse the more I try.

Each medic has looked at me and said "you don't have MG" when I've asked if it may be that. My eyelids droop a little, but continually and not any more when fatigued.

I'm at a loss because the medics think its in my head but the feelings and worsening is very real.

My questions are:
1. Does this sound like MG?
2. I understand most have problems with liquids first - it is solids initially for me - does it still sounds like MG?
3. How did you get diagnosed (particularly bulbar MG folk? What test convinced a neuro?
4. Is it worth trying to get Mestinon to try (don't know how though)?

Many thanks,
Flash