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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi everyone,
I've got MG and have been doing plasma pheresis for about 3.5 years. Recently I was asked by the hospital I go to to participate in a nursing conference on apheresis. I agreed to talk about p.p. from the patient perspective. So, I'm wondering if any of you who are doing p.p. might have some suggestions you want me to present at this conference. I'm focusing on things that nurses can do to help make the experience better, like how they do the dressing on catheters so it stays down longer, how to help decrease boredom, how to reduce pain from the needles, etc. I would really appreciate any information or suggestions any of you might have that I can add to my presentation. I want to make sure that whatever I tell them is actually helpful to patients! So, I'm looking for things that you think the nurses could do to make the experience better for you. Thanks for your help!
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MK If you can't be a good example, you can at least be a terrible warning. Janet Evanovich If you can't be brave, be determined, and you'll end up in the same place. Lisa Scottoline That love is all there is, is all we know of love. Emily Dickinson |
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