Thank you so much! I too will get with some raspberry tea! I really enjoy this forum where people can get info from others although realizing every case could be different, so that has too be considered. I have been in Icu were the drs. Explain that his myasthenia is Very Active! I have seen him flap around like a fish out of water. Over 60 days in he hospital last year on only 4 admissions. I asked his neuro dr to do another antibody test to see if he might have more receptors on the muscles if there was lower antibody count, I also told her that the national Myasthenia association recommends checking four times a year! Backed it up with what John Hopkins recommends also, cause she explained that's not how the VA hospital does it. She also brought in the senior neuro Dr. Who says even if the antibody count was lower they want him to stay we're he's at on his meds ( cause of course he's stable ). But with liver problems I feel less. Medicine is best. , if he can stay stable, anyways I'm rambling on but thank you and hope to be part of much discussions ! God bless everyone!

You are welcome.

Testing four times a year! That is a lot. I see the benefit, but how can anyone afford it? That test is so expensive, it was either $600 or $900, I can't remember now. If his symptoms are severe, he should stay even if the antibodies aren't high, that makes sense, best to be safe. MG is so unpredictable.

Please be sure to tell your doctor about the tea before drinking it, just to be on the safe side.

My count was very high when I was diagnosed (per my neuro), but he also told me how high the count is does not predict that severity of the mg. Again, the same old refrain, it's different for different people!

Good luck.

Any ideas on dosage equivalents between Huperzine A and Mestinon? Any knowledge about how effective it could be, how soon it would kick in, and how long the effects would last?

Tatia