Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-22-2012, 12:29 AM #1
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Heart Update on thymectomy

Hey crew

well things have not gone as planned - i was suppose to get out of the hospital on friday after having the thymetomy on tuesday. Instead i ended up on 5 days of plasmapherisis and reintubated because i crashed Wednesday night / early Thursday morning. I've never had so many tubes and lines coming out of me in my entire life!!!!!!! Now we are aiming for Monday - which considering i just got sent to down to the step down from ICU for the second time... I hope it works this time. At least my daughter brought me something to do = lol until the battery dies on her laptop.


keep me in your thoughts - need all the good karma i can get these days.....
Ravenred is offline   Reply With QuoteReply With Quote

advertisement
Old 01-22-2012, 04:20 AM #2
pingpongman's Avatar
pingpongman pingpongman is offline
Member
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
pingpongman pingpongman is offline
Member
pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default

Oh my gosh! My prayers are with you. Hospitals are awful place to be.
Hugs
Mike
pingpongman is offline   Reply With QuoteReply With Quote
Old 01-22-2012, 08:31 AM #3
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default

Thanks for the update. I really appreciate that. I'm sorry this has been such a terrible ordeal. Here's hoping for Monday!

Abby
Stellatum is offline   Reply With QuoteReply With Quote
Old 01-22-2012, 01:43 PM #4
Southern Bell Southern Bell is offline
Member
 
Join Date: Apr 2011
Posts: 103
10 yr Member
Southern Bell Southern Bell is offline
Member
 
Join Date: Apr 2011
Posts: 103
10 yr Member
Default

I know how scary being in ICU with multiple tubes running into your body can be. I was in ICU for a week from a bad reaction to mestinon after my thymetomy. Try to stay calm and hopefully your condition will be better soon so that you can go home.

You are in my prayers for a successful recovery.

Southern Bell
Southern Bell is offline   Reply With QuoteReply With Quote
Old 01-22-2012, 01:50 PM #5
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
Default

Very sorry things have not gone as planned!! Here's hoping you improve, and improve, and improve from here on out. You've gone through so much...time for good things to start happening for you!!

Pls keep us updated on your progress as you can..lots of folks here wish the very best for you.
suev is offline   Reply With QuoteReply With Quote
Old 01-22-2012, 02:05 PM #6
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hello Ravernred

I am so sorry that you have such an awful time. Being laid up in the hosptial is no place to get some rest. Sorry you had to be intubated. I have heard that is a difficult experience. My heart goes out to you . Please get well soon, so you can come home and really get the rest you need. You will be in my thoughts and prayers. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 01-22-2012, 09:39 PM #7
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Tongue Thank you all!

Thank you all for the warm thoughts- today has been better! Central lines are out, chest tubes are out, wound vac is off - down to 1 IV, breathing txs are prn.... and I actually got to take a sit down shower today! Yeah now I not stinky on top of everything else! Now if I can get the potassium up to where they want it then I can go home tomorrow! (sitting at 2.9)
Ravenred is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Stellatum (01-23-2012)
Old 01-22-2012, 11:02 PM #8
teresakoch's Avatar
teresakoch teresakoch is offline
Member
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
teresakoch teresakoch is offline
Member
teresakoch's Avatar
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
Default

Oh, gracious! Glad that you are still with us - sorry things took a bad turn for you....

Well, at least you got out of having to cook/clean dishes/etc. for a few more days, right?
teresakoch is offline   Reply With QuoteReply With Quote
Old 01-23-2012, 03:53 AM #9
pingpongman's Avatar
pingpongman pingpongman is offline
Member
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
pingpongman pingpongman is offline
Member
pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default

OK It's Monday "Get outta that bed and rattle those pots and pans"
Hugs
Mike
pingpongman is offline   Reply With QuoteReply With Quote
Old 01-23-2012, 10:59 AM #10
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Re: going Home!

Hello Ravenred, so glad to hear you are getting out of the hospital. Didn't that shower feel good? That is one thing I hate about the hospital, showers only come after you get better. Hope you are home, and comfortable and able to sleep better soon. Hope you didn't have any pain with tubes coming out. good luck and I am happy for you. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
thymectomy draggin' Myasthenia Gravis 8 06-23-2011 10:00 AM
thymectomy brandonc Myasthenia Gravis 18 02-08-2011 11:50 AM
Thymectomy scrubbs Myasthenia Gravis 8 11-21-2010 12:38 AM
Thymectomy???? tnalawson Myasthenia Gravis 5 08-06-2010 09:25 AM
Thymectomy cricket001 Myasthenia Gravis 7 02-12-2010 12:13 AM


All times are GMT -5. The time now is 10:21 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.