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Old 01-24-2012, 03:45 PM #1
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
Default IVIG wearing off

I have a question for yall who do IVIG on a regular basis.. I had my first maintence dose 2 weeks ago- and have felt A M A Z I NG since about 3 days after the infusion.. It was the first time I felt semi normal in almost a year.. Then a couple of days ago i started feeling run down, turns out I got my childrens fever/cough/cold etc.. I felt just run down all over for a day and then today my speech and all over weakness/including my hands is returning it seems. still not NEARLY as bad as I was a month or so ago by any means.. but over the past 2 days the symptoms are defintely returning..
Do any of yall have your IVIG wearing off before that 3 week mark ?
Does getting sick make it wear off faster??

I'm not on any other meds- they are trying to keep me off steroids and immunosuppresants due to side effects.. I hope to stay off them as well!

Does increasing the dose of IVIG help it "last longer" or can only frequency do that.. Apparently i'm on a fairly small dose (30g)

Thanks agian for yalls help!! hope everyone is doing well!
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