Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 02-03-2012, 06:22 AM #1
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default rheumatoid arthritis with the MG?

The last two weeks have been bad., I have the myasthenia , but luckily not terrbly, mostly my eyes and face and fatigue., but now they say I have rheumatoid arthritis, my hands wrists and fingers are so painful , swollen and hot, it is almost to the point of incapaciting me.,especially at work., they are doing some blood work and testing., my physician says sometimes with one autoimmune disease another will follow. Anyone else have this happen. I am afraid I am not going to be able to work.
whirlwind123 is offline   Reply With QuoteReply With Quote

advertisement
Old 02-03-2012, 08:46 PM #2
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Well, that sucks! I'm sorry you have one more disease.

I have MG and celiac disease. Lots of other people have more than one.

How did they diagnose you? Antibodies? X-rays? Clinical exam? Please make sure it is "ONLY" arthritis.

I hope you will go see a rheumatologist, since they are the ones who deal with the inflammatory disease. There are a lot of things you can do as far as food and supplements for arthritis. Omega 3's like fish oil, flax oil, nuts, chia seeds, etc. will help with inflammation. Foods like eggs, beef, dairy and soy have been long known to increase inflammation.

Lyprinol is an anti-inflammatory made from mussels that has been proven to help inflammation. D-Ripose has been shown to help with both MG and inflammation, however, it is not without side effects and you should go over any new drug or supplement with your doctor. You could have interactions with any drugs you are taking now or any conditions you have.

It doesn't mean you can't work. You really need to be assessed by a rheumie first, to figure out how advanced things are, etc. They are so thorough in looking patients over. They actually look at the skin, nails, tissue, joints and anything that will help them help you. Try to find one in a specialized group, like a rheumatology group not in an HMO.

I really hope you can live well with RA. Oh, and make sure they check your vitamin D levels if they haven't already!


Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
whirlwind123 (02-06-2012)
Old 02-03-2012, 09:42 PM #3
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
Default

Well crud...I'm sorry you've been so uncomfortable. Have they offered you any relief for the RA....or referred you to a rheumy? I hope you can find something that works well enough for you that you can keep working if that's your wish. Do I remember right...are you a teacher?
suev is offline   Reply With QuoteReply With Quote
Old 02-04-2012, 07:53 AM #4
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Default

My husband has had autoimmune arthritis since his teens. In his 30's, he was in so much pain and could barely hobble around the house. I thought he would end up an invalid. Then a rheumatologist prescribed a TNF inhibitor and he's like a new man.

He doesn't have MG, and I don't know anything about the interaction of MG with RA or RA drugs. I just wanted to give you some hope regarding your RA diagnosis.

Tatia
Geode is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
whirlwind123 (02-06-2012)
Old 02-05-2012, 03:47 AM #5
Seamusmac Seamusmac is offline
Junior Member
 
Join Date: Jan 2012
Location: Upper Hutt New Zealand
Posts: 24
10 yr Member
Seamusmac Seamusmac is offline
Junior Member
 
Join Date: Jan 2012
Location: Upper Hutt New Zealand
Posts: 24
10 yr Member
Default

Quote:
Originally Posted by Geode View Post
My husband has had autoimmune arthritis since his teens. In his 30's, he was in so much pain and could barely hobble around the house. I thought he would end up an invalid. Then a rheumatologist prescribed a TNF inhibitor and he's like a new man.

He doesn't have MG, and I don't know anything about the interaction of MG with RA or RA drugs. I just wanted to give you some hope regarding your RA diagnosis.

Tatia
I have Arthritus as well as MG. The type of Arthritus has not be diagnosed as yet. My fingers on both hands are twisting and becoming mis-shapen. My doctor seems loathe to investigate , probably because it was not too painful until the last few weeks.
Seamusmac is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
whirlwind123 (02-06-2012)
Old 02-05-2012, 08:48 AM #6
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default Medication

My Doctor sent me for blood work for alot of things, including lupus, gout, rheumetoid etc., He feels it is the rheumatoid by seeing and exam., he gave me a medication called Mopec, and a Gel I must rub in 4 times a day and a Medrol pack, till all the blood work comes back.
whirlwind123 is offline   Reply With QuoteReply With Quote
Old 02-05-2012, 08:48 AM #7
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default

He also advised he would be sending me to a Rheumatologist.
whirlwind123 is offline   Reply With QuoteReply With Quote
Old 02-05-2012, 06:14 PM #8
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Did you mean Mobic?

http://www.medicinenet.com/meloxicam/article.htm

Please read all the info carefully. I don't know what other drugs you are on or if you have high blood pressure but you really have to read about drugs before you take them.

Be careful with the steroids. I'm sure you know that it could make your MG worse right away.

That was good info, Geode.

Seamus, Go see a rheumatologist! They'll take care of you right away.

WW, I hope you'll get the relief you need to keep on working. There are alternative medications, which you might want to ask a rheumy about. And if you haven't thought of it, adding flax or fish oil or other good omegas into your diet (like walnuts), that would help somewhat.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
whirlwind123 (02-06-2012)
Old 02-06-2012, 05:57 AM #9
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default

Quote:
Originally Posted by suev View Post
Well crud...I'm sorry you've been so uncomfortable. Have they offered you any relief for the RA....or referred you to a rheumy? I hope you can find something that works well enough for you that you can keep working if that's your wish. Do I remember right...are you a teacher?
I work with the developmentally disable, I am a secretary, so I do alot with my hands.....................financially i need to work., but I also have a disabled husband at home whose disabilities are worsening, so I have to make some choices very soon, .......
whirlwind123 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
RSD and Rheumatoid Arthritis bassman Reflex Sympathetic Dystrophy (RSD and CRPS) 7 04-09-2013 01:25 PM
Anyone with Rheumatoid Arthritis & Bipolar? Sandy Autoimmune Diseases 12 08-07-2012 03:15 PM
Rheumatoid Arthritis? canoepa Arthritis 7 08-04-2008 11:54 PM
Rheumatoid arthritis jccgf Gluten Sensitivity / Celiac Disease 7 07-23-2007 12:46 PM


All times are GMT -5. The time now is 05:34 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.