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Old 02-06-2012, 12:55 PM #1
kimmyF kimmyF is offline
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Join Date: Feb 2012
Location: Alberta, Canada
Posts: 49
10 yr Member
kimmyF kimmyF is offline
Junior Member
 
Join Date: Feb 2012
Location: Alberta, Canada
Posts: 49
10 yr Member
Default Mestinon

I have recently been diagnosed with Myasthenia Gravis, I have done one set of IVIG infusions and are set to do more soon, I am on Mestinon which has saved my life, I'm not sure how I would be managing without it, but it says not to have spicy food, caffeine or alcohol while on this medication! Why?? Somedays caffeine is all that gets me through the day, and my husband and I enjoy a drink or two every now and then!! While it just make the Mestinon not work properly or will it make me sick? I am going to see the Neurologist on Wednesday and I'm hoping to find out when I can have surgery to remove my Thymus Gland. Does anyone know what the recovery time is after surgery? I have two small children to take care of and have no idea how I'm going to make this all work!
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