Originally Posted by sugrkiss

Hi kimmy!
I was 7 months pregnant with my 3rd son when my symptoms started. We had no clue as to the cause... It started in my mouth, and I had been having a lot of dental work at the time so I thought it was a side effect of the Novocain. During the following three months my symptoms spread to my throat, nasal area ( it became impossible to clear my sinuses) breathing, arms and back. Being heavily pregnant and having trouble breathing is pretty common. I did get a referral to a neuro, but they wanted to see me after delivery. Delivery is where it got bad. I've always been an excellent pusher and delivered both my other babies in less than 20 minutes. My 3rd took over an hour and had to be assisted by the vaccume and a nurse pushing from above, he was blue and not breathing when he arrived. My pushing muscles had completely given out, and I was crying that I couldn't breath and something was wrong. Thank god my baby was ok and my breathing stabilized when I was able to sit up and relax. Within 3 days of his birth, I couldn't walk, sit myself up, hold him, shower or eat without choking. I was able to see my nuero on an emergency visit and he diagnosed me immediately. The morning I saw hI'm my left eye started to droop. During my thymus scan they found I had pneumonia from asperating at night.
Also I was induced two weeks early with pre eclamsia and very very low amniotic fluid, which I had never experienced with my other pregnancies.
Worse than my symptoms, was my complete dependence on my family for care. Even taking mestinon I couldn't care for any of my kids on my own. The first two months I was able to nurse with help but couldn't burp,change, bath or carry my 7lb newborn, much less play with my 3 and 4 year olds.
I remember becoming suicidal and thinking I would be spending the rest of my life as a burden and watching my kids grow up from afar.
My baby didn't have MG when he was born thank god!
Ive wanted another baby myself but the risks and consequences are too high for me.
I'm not trying to discourage you, I just wanted to share my story. Being that you are already undergoing treatment and your pregnancy, delivery,and recovery will be better monitored and understood than mine, you may have a healthy beautiful experience!
Also, the first two years after diagnosis tend to set the stage for your illness.. I don't know how long you've been dealing with MG , but I highly recommend waiting until you feel "stabile" before making your decision.
Currently I'm experiencing a pretty stabile period. Doesn't mean I'm always strong or feel capable to be a stay at home mom while hubby works. There are days my kids miss school because I just can't get them up and ready on my own. We have a housekeeper weekly to do the real cleaning, and frozen dinners are a staple in my freezer for nights I'm too tired! But I'm happy and my kids are taken care of and well loved.
Recently because of the baby fever we have decided to look into fostering and possibly adopting. We aren't looking for a baby tho, just a child or children that need a loving family. My baby, Judah will be 3 in July, and I've been diagnosed for two and a half years. We are still trying new treatments to try for medicated remission. I did have a thymectomy when Judah was 5 weeks old, and it actually did help! My symptoms stopped progressing. I do have complete generalized MG, legs and embarrassingly bladder and every other muscle involved. But my legs don't collapse on me! I can walk as much as I want... They become like 200 lb weights and hard to bend, and my breathing gets labored and my back and stomach bend and pooch... But if I have to make it to a bench I can! But once I sit down it's all over... Could take two days to be able to walk again... And add extreme muscle pain...
Anyway now I'm rambling. I hope you do have remission from your thymectomy and are able to
Have as many babies as you want! I hope this finds you healthy and strong.
Jessica