Kind of a shell game with the meds but I reckon its better than not having any options!

I was not feeling like 30mg of mestinon x3 and 4 daily were doing much other than having some GI issues. Went off a cpl times and back on and still not sure. I asked my Neuro to get another opinion as he was rec thymectomy and he agreed so went to Washington University ( part of Barnes Hosp ) in St Louis last week and went thru a day of needles, shock thingy, tons of blood draws etc. Most of the tests they told me looked pretty good while they were being done.
Dr is an old boy that had many years in at John Hopkins - he said he didn't see much sign of MG and def not ALS. I figure with his experience he should be well versed... So, awaiting some blood draw results and other test results. He commented part of my symptoms could be neuropathy from bad discs. So going thru what many of you all have had chasing my tail a bit. However it could lead to a solution of sorts so hopeful!
Been busy at work of late and that's been a daily struggle so have not dropped by this site much - glad to see some friends again!
Good luck to all! :rolleyes:
Randy

I have been on Imuran (Azathioprine) for approx 18 months to 2 years, I have monthly blood test and have not noticed any side effects.

I believe Imuran and Azathioprine are the same. If so I have been on Azathioprine for 3 years as well as Mestinon. I have not had any side effects.

azathioprine and flu like symptoms
 

my husband was on azathioprine and developed severe flu like symptoms and labs off the wall....stopped for a few weeks to determine whether it was the med or actually the flu...within 5 hours of restarting the flu like symptoms were back. the bummer was he had relief of symptoms about 1 week into the med.....

Imuran worked for me also but the side effects were so bad we didn't realize it was working.
Mike