I just saw my new neurologist in Iowa City and she is taking me off of the CellCept im on and putting me on Immuran. Is there anyone who takes or has taken it and can tell me what it does to your body vs how much it helps?

My Neuro went just the other way. They started me on Imuran then switched me to CellCept. I was on Imuran for 12 months. It made me very sick and I lost 35 pounds. But actually the Imuran worked and we did not know it because the side effects were so bad. Imuran works for a lot of people it just did not work for me keep that in mind. The main side effect was nausea. The last few months I was eating about 500 cal a day. When I went off Imuran and switched to CellCept my doctor apologized and said he knew Imuran was making me sick. The reason we know that the Imuran was working was when he tapered me off after two days I was Superman which lasted about six weeks. I wish you the best the luck and hope it works for you.
Mike

I've been on Imuran for almost ten months. I haven't noticed any side effects. I think it's finally starting to help.

Abby

Abby that is wonderful! I'm so happy for you.
Mike

I also am on imuran. Ive been on it for a year and a half. It works a little bit for me but not.enough to be the only med i use. No bad side effects tho.

I now take imuran 275, prednisone 50, prograf 10, and ivig and still have persistant symptoms. Good luck man

Wow good to hear from you Tyson. I was worried about you. You haven't posted in a while. Hope this finds you doing well!
Mike

I just wanted to say that I hope it works well for you.

Ditto, Tyson, I hope you're doing ok.

Iwasanurse, I'm sorry, forgot your "real name" You are VERY lucky you were okay. Have they checked your liver function?

Brian, good luck with the switch. Make sure you have the TPMT test BEFORE you start Imuran!

Annie

Thanks Annie. After 7 days of the hospital, I am recovering slowly. I see my primaty doc on tues and he is going to liver function studies again.

Kind of a shell game with the meds but I reckon its better than not having any options!

I was not feeling like 30mg of mestinon x3 and 4 daily were doing much other than having some GI issues. Went off a cpl times and back on and still not sure. I asked my Neuro to get another opinion as he was rec thymectomy and he agreed so went to Washington University ( part of Barnes Hosp ) in St Louis last week and went thru a day of needles, shock thingy, tons of blood draws etc. Most of the tests they told me looked pretty good while they were being done.
Dr is an old boy that had many years in at John Hopkins - he said he didn't see much sign of MG and def not ALS. I figure with his experience he should be well versed... So, awaiting some blood draw results and other test results. He commented part of my symptoms could be neuropathy from bad discs. So going thru what many of you all have had chasing my tail a bit. However it could lead to a solution of sorts so hopeful!
Been busy at work of late and that's been a daily struggle so have not dropped by this site much - glad to see some friends again!
Good luck to all!
Randy

I have been on Imuran (Azathioprine) for approx 18 months to 2 years, I have monthly blood test and have not noticed any side effects.