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Old 02-23-2012, 02:34 PM #1
kimmyF kimmyF is offline
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kimmyF kimmyF is offline
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Default Double vision

My double vision is back I find it a very hard symptom to deal with!! Is it my MG or Graves Disease or both?????? Is the any way I can try to prevent it? I almost feel it is a bit hormonal and get the double vision at the same time as my period, is there any truth to this or just a coincidence????
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Old 02-23-2012, 03:04 PM #2
Stellatum Stellatum is offline
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Oh, yes, there's a definite hormonal correlation, not just anecdotal, between myasthenia symptoms and the female cycle. I usually get much worse a couple of days before my new cycle begins.

I don't know what to suggest. I messed with progesterone supplements, with the help of my rather reckless ob/gyn, and ended up making my MG a lot worse. I ended up in the hospital for a week. I'm not saying you shouldn't look into it--just be careful. I did it all wrong. I supplemented and then stopped abruptly because it was making me sick, and ended up falling off a much higher level of progesterone. It seems to be the shift that makes my myasthenia symptoms worse, and I made the shift more radical.

I suppose it would be worthwhile to look into natural treatments for PMS--it's usually harmless stuff like B vitamins, and avoiding salt and caffeine.

Are you going to be taking any immunosuppressant drugs? My neurologist said that the ones I was taking for my MG might help with the Graves, too.
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Old 02-23-2012, 03:15 PM #3
kimmyF kimmyF is offline
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The only med's I'm on is Mestinon, and they have given me Radioactive Iodine for my Graves Disease, but I just took that on Jan 26, so I'm not sure how long it take before my Thyroid will stop working and go Hypo..........

I find it seems to be towar the end of my cycle, and if there is a connection, then I will look into options such as depo provera, which makes me not get my period at all!!!!



Quote:
Originally Posted by Stellatum View Post
Oh, yes, there's a definite hormonal correlation, not just anecdotal, between myasthenia symptoms and the female cycle. I usually get much worse a couple of days before my new cycle begins.

I don't know what to suggest. I messed with progesterone supplements, with the help of my rather reckless ob/gyn, and ended up making my MG a lot worse. I ended up in the hospital for a week. I'm not saying you shouldn't look into it--just be careful. I did it all wrong. I supplemented and then stopped abruptly because it was making me sick, and ended up falling off a much higher level of progesterone. It seems to be the shift that makes my myasthenia symptoms worse, and I made the shift more radical.

I suppose it would be worthwhile to look into natural treatments for PMS--it's usually harmless stuff like B vitamins, and avoiding salt and caffeine.

Are you going to be taking any immunosuppressant drugs? My neurologist said that the ones I was taking for my MG might help with the Graves, too.
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Old 02-23-2012, 03:33 PM #4
Stellatum Stellatum is offline
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Oh, I just thought of something. The radioactive iodine treatment for Graves can make the Graves eye symptoms worse--I think it's because as the thyroid dies, it releases stored-up thyroid hormone. I don't know if that's what's going on, but it's a possibility. You should talk to your endo about it. It may be impossible to tell if it's the MG or the Graves that's doing it.

I'm sorry you're going through so much at once. Hang in there.

Abby
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