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Apparently he worked closely with another doctor who had mg and therefore, he was familiar with the issues. He just stuck his head in the door after the ambulance dropped me off and asked "Is it your mg?" When I nodded yes, he immediately ordered the bi-pap.
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That explains it!
I believe most of my colleagues and the nurses working with me, would know very well how to recognized MG related breathing difficulties and how to manage them. They have also witnessed numerous times, the effect of a relatively short time with a respirator.
I wonder if there is any more effective way to disseminate this knowledge, other than having physicians with MG "teaching" their colleagues.
Also, why don't they give you a bipap you could use at home, when you are not doing well, instead of coming to the ER for that?
03-07-2012, 01:06 AM
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