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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-11-2012, 02:57 PM | #11 | ||
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Prednisone has helped, but I still experience speech problems in my job about ever other day or so. Eating is often a chore, not a pleasure. My Neuro never mentioned MuSK MG, so I guess I don't have that. I think he know what I had from the start, but one of the confirmations was the presence of MG specific antibodies in a blood test. |
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03-11-2012, 02:59 PM | #12 | ||
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03-12-2012, 05:34 PM | #13 | ||
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Hi Scott,
As you're aware, you're really early into the diagnosis and solution here. Don't jump from one thing to the other, you'll mess yourself up more. Have you had an MRI / CATscan of your thymus? --- is there a reason for your developing the condition? As far as treatment goes, work closely with your neuro and gp. You may want plex / IVIG but if they want imuno suppressants you may be better off going that route. I hope things work out for you and you can get this managed well and quickly. Brian. |
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03-12-2012, 09:09 PM | #14 | ||
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Just waiting to something to happen I guess and a bit anxious. Thanks again. |
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03-13-2012, 08:34 AM | #15 | ||
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I have found 30mg every four hours works best for me, more than that proved too much. Currently on prednisone and mestinon as I had major MG attack in december. Hopefully will be off the prednisone soon, raised my blood pressure and the drug just scares me.
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