Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-20-2012, 03:29 PM #1
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default can we have our eyes dilated?

I wouldn't let the optometrist dilate mine today even though he said they don't use atropine. I told him I'd check with my neurologist and get back to him, which I will--but I would like to hear from you folks, too. Thanks.

Abby
Stellatum is offline   Reply With QuoteReply With Quote

advertisement
Old 03-20-2012, 05:11 PM #2
pingpongman's Avatar
pingpongman pingpongman is offline
Member
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
pingpongman pingpongman is offline
Member
pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default

I had mine dialated before I was dx'ed with no ill effects.
Mike
pingpongman is offline   Reply With QuoteReply With Quote
Old 03-20-2012, 07:58 PM #3
Juanitad's Avatar
Juanitad Juanitad is offline
Member
 
Join Date: May 2009
Location: Eastern TN
Posts: 314
10 yr Member
Juanitad Juanitad is offline
Member
Juanitad's Avatar
 
Join Date: May 2009
Location: Eastern TN
Posts: 314
10 yr Member
Default

I get mine dilated every 6 months because I've had type 1 diabetes for almost 25 years - no problems.
Juanitad is offline   Reply With QuoteReply With Quote
Old 03-20-2012, 09:42 PM #4
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
Default

My eye doc spent extra time in different light to examine retina - said he saw nothing that would warrant a need for dilation. He did say that if he ever saw anything concerning we could do it with the proper precautions (though he never outlined what those were!).
suev is offline   Reply With QuoteReply With Quote
Old 03-20-2012, 10:38 PM #5
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Abby, Did they numb your eyes for the glaucoma test?

They do have numbing and dilating drugs which they can use separately. I have problems with both.

Did you get the names of the drugs? Maybe you could do some research on them.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Old 03-21-2012, 07:08 AM #6
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default

Annie, he did the glaucoma test without numbing my eyes first (which didn't hurt at all--I don't know why they bother with the numbing drops in the first place).

He reeled off a list of drugs, but I didn't write them down. I did find this: http://www.myasthenia.org/LinkClick....vg%3d&tabid=82

Quote:
Timolol, the beta adrenergic blocking eye drop, has been reported to be associated with increased myasthenic weakness. Similar observations have been made with betaxolol hydrochloride.
I'm just worried that if they mess with the neuromuscular junctions in my eyes, they won't bounce back.

Abby
Stellatum is offline   Reply With QuoteReply With Quote
Old 03-21-2012, 07:46 AM #7
winic1 winic1 is offline
Member
 
Join Date: Feb 2011
Posts: 295
10 yr Member
winic1 winic1 is offline
Member
 
Join Date: Feb 2011
Posts: 295
10 yr Member
Default

timolol is a glaucoma medicine. Used for treating glaucoma, as a daily eye drop to lower intraocular (eye) pressure, not for the numbing part of the test.

Prescribed as a single medicine (usually timolol maleate), generic, or under the brand names Betimol, Istalol, Timoptic, and Timoptic-XE.


It is also one of the two components in the glaucoma medicine Cosopt, just recently gone generic so now labeled dorzolamide hydrochloride and timolol maleate solution.

You will not be given timolol as part of a pressure check or pupil dilation at an office visit. Not its purpose. No need to worry about that one.
winic1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Stellatum (03-21-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
In Your Eyes Jaime_S Creative Corner 0 09-24-2010 12:51 AM
RSD in eyes? SandyS Reflex Sympathetic Dystrophy (RSD and CRPS) 17 07-08-2010 01:55 PM
Myasthenia gravis and dilated cardiomyopathy gonslo45 Myasthenia Gravis 7 11-21-2009 07:26 PM
red eyes? AtlantaMG Myasthenia Gravis 6 10-08-2009 09:43 PM
The Eyes Have It! GI6607 Myasthenia Gravis 7 09-23-2009 04:27 PM


All times are GMT -5. The time now is 04:36 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.