Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 03-26-2012, 01:24 PM #1
Angel19291 Angel19291 is offline
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Join Date: Mar 2012
Posts: 9
10 yr Member
Angel19291 Angel19291 is offline
Junior Member
 
Join Date: Mar 2012
Posts: 9
10 yr Member
Frown Daughter with possible mg

Hello everyone I have been reading in this forum and my mind is on overdrive. My daughter is 4 years old and we noticed in December her left eye looked a little droopy. We went to her pediatric dr and she referred us to pediatric opthramologist and to get in right away. So we went there two days later and they checked her eyes. She has perfect vision. The dr thought I was over reacting and that her eyes didn't look that droopy. I showed her pictures of my daughter from before and she decided to measure her eyes. Her left eye measured 8 and right was 9. She wanted us to come back in two weeks so at the two week appointment she noticed the right eye now looked droopy so she measured again and left measured 6 and right 7. She believed it was myasthenia gravis. Well I had never heard of it and she wanted her to see a neurologist. So I started freaking out and wanted a second opinion. I went to another pediatric opthramoglist and he noticed eyes looked great other then the droopiness. Saw pressure behind the eye so we had a MRI done and it came back normal. We went to a pediatric neurologist and he thought it was ocular myasthenia and wanted us to see a neuro that specializes in that. We just went there Thursday and he is pretty sure she has mg. she is a healthy little girl and he thinks it may only be in her eyes. This is where I have a couple questions. She did blood work on Thursday and it's so hard waiting for the results. He is testing her for some other disorders. He noticed her calf muscle and Achilles tendon was very tight. I dismissed it cause we just spent 3 days walking in Disneyland. Is this something that I should be concerned about? Also she never really had reflexs in her knees when dr would check her. Is this something related to mg? My daughter also has gotten very emotional lately. I have mentioned it to the dr and they say it's most likely her age but it is crazy. She will just cry on a drop of a dime. I asked her if she sees double and she says no. She gets tired very easily but my daughter is so very active. She can run all day stop for 5 minutes and rest then at it again. Please if anyone has any info while I wait for the blood test to come back it would be greatly appricated. Thank you for letting me just write. I haven't been able to really talk about it I feel numb.
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