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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Hi everyone, those of you who may have read my earlier posts know that I am scheduled for a thymectomy next thursday, was given no option but to have a medial sternotomy / spilt sternum, my question is those who have had the same procedure what was your recovery time like / pain and any other information you may think is necessary. My biggest dilemma is been a single mum with two toddlers and trying to explain to them mommy cant lift you does anyone know how long you are unable to lift things for? anyways I look forward to hearing all your thymectomy / sternotomy stories, have a great day / night everyone till next time
Melissa ![]() |
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#2 | |||
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Melissa, I haven't had it, but I will keep you in my prayers next Thursday! Simon |
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#3 | ||
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Melissa,
Mine won't be a good guide for you. I had the sternotomy and it caused a problem with a disc I was having trouble with, so I had to have a cervical discectomy exactly one month after. Even with that, though, I was back to work by September 4th after the thymectomy on July 18 and discectomy on August 18. You'll be surprised how receptive toddlers are to the fact that for a while you can't lift them. My granddaughter reminded me that I shouldn't pick her up! At the tender age of 3 1/2. (She lived with us, so it was just second nature to pick her up.) If you explain to them that mommy has an owie and can't pick them up until it gets better, they will be very understanding! I am sorry that you have to explain that to them though! I was so lucky my children were grown. Best of luck on your surgery - and we'll all be sending positive thoughts and prayers your way for a speedy recovery and REMISSION!!!!! Hugs!
__________________
Becky |
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#4 | ||
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My chest was very sore after my thymectomy. I had it in Aug. and still feel weak in my upper body. It hurt bad for 3 days in the hospital, when the chest drain tubes came out(3 days)that helped a lot. I walked real gingerly for 1 - 2 weeks. I couldn't drive for a month, their main worry is having a crash and hitting your chest on the steering wheel. I went back to work after 6 weeks. I am a high school teacher and missed the first month of school.
Now my chest doesn't hurt, but every once in awhile it feels a little strained. The main thing I noticed was the weakness. I couldn't even lift a pan of macaroni with one hand to drain it. Sneezing the first few times was extremely painful. I kept a pillow nearby and bearhugged it when I felt a sneeze coming on. That didn't last for too long. My kids are 10 and 14, so I don't carry them anymore. I can tell though my upper body is weak. I have trouble reaching for anything over my head. It is hard for me to handle. |
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#5 | ||
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Member
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Melissa,
Please look up my post "thymectomy what to expect - in detail". I cover the hospital stay etc. I found that the first 7-10 days were the worst for pain but I managed with advil and tylenol. I did not lift anything including my kiddies for six weeks and did not drive during that time as well. I kept my pillow with me for the first three weeks. Sneezing will be the worst but it does get better. I would say I started to feel somewhat normal at the three week mark and was back to full mom duty by six weeks. Any questions just let me know. ![]() |
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#6 | |||
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Senior Member
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Hey hon! I was entertaining 9days after my surgery - making fajitias and hosting my niece's b day party! Granted, I am the exception, but it really wasn't that bad! I did take a lot (and I do mean ) a lot of pain meds (4--6 daily), but felt pretty good!
![]() You willl prolly not be allowed to drive or lift anything for 6 weeks - is there ANYONE who can help you during this time? It just isn't worth it to go through the surgery and then mess up and lift anything too heavy! ![]() The BIG thing for me was sleeping! I slept sitting up for months after my surgery - just hurt too much to sleep on my back! And I kept my chest pillow with me @ all times! All times! You will want to remember the pillow! It is HUGE! JUst remember to take a deep breath and relax! It does get better after the surgery! It really does! Big hugs! Erin ![]()
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Erin . |
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#7 | ||
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![]() Absolutely do not lift/push/pull anything before they tell you you can, you don't want your chest clicking ![]() There're some discussions of what to expect from people immediately after their thymectomy's if you scroll back several pages of posts. Best of luck Cheers, Brian. |
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#8 | ||
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I forgot to talk about pain meds. I did take Vicodin for about a week after I got home. I also took Benadryl because I was itchy from the meds, it also helped me sleep. I had to sleep on my back when I got home. I too kept my head propped up on a few pillows. I wanted to lay on my side so bad, but I couldn't because it hurt. I always had pillows around me for support. It was also tough to sit up from a lying position.
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#9 | ||
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New Member
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Hi! I am scheduled for surgery on Apr.3rd @ 9am. I am really nervous and would like some information on this. If anyone has had this surgery, can u plz let me know what ur experience was. What was the recovery time, pain meds. used, and any other info. would be greatly appreciated!!
Thank-you!! |
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#10 | ||
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Junior Member
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Hi Tinna,
Not sure if you will get a chance to read this before your surgery, but I just wanted to wish you the best of luck, I had my thymectomy via full sternotomy done a few years ago, as a single parent of 2 toddlers I found it a bit more difficult, I was in hospital 11 days post op, the first 2 days I really dont rememeber much, recovery I think for the first 3 weeks was really hard and I was on regular pain meds, if you have a comfy lazyboy chair to sleep in it helps as I found it really hard to get in and out of bed. At the time I was also studying nursing so I was back at Uni within the 3rd week, keep your huggy pillow clsoe by, dont lift anything heavy and keep up with the pain meds ![]() I wish you the best of luck, let me know how you go. Quote:
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