Hi guys..
sorry have been absent for a while, been trying to keep up in school.


I am actually doing pretty well, considering. Still on the plethera of meds, cant exersize, but hey im alive and breathing.

Im coming to ask for a little advice, which I know some of you have already helped with.

I was emailed friday by the SCT coordinator @ Northwestern saying that they have been approved by the FDA, and she is sending the authorization to my insurance on Monday. It sounds like they really want me to do this, and I want do to this as well, however, im not sure i "deserve" it. Right now I am able to walk, talk, breathe, swallow... and I feel as though they should use the limited amount of procedures they do on someone else who needs it more badly than I.

I realize that I went off my medications and the monthly IVIG, i would more than likely be in that position. But, right now Im not, and i hope some of you can understand the questioning that is going through my head..


OBVIOUSLY i want this more than anything in the world, and I hope endlessly that it works out to do so. I deserve, i know, but I feel like there is always someone more deserving.

Anyway- I guess Im just venting and looking for reassurance on the topic of disparity.

I hope this finds you all well, and If people are looking for treatments, I highly recommend prograf.