Abby---YOU push the empty wheelchair. Holding onto the handles will give you more support and enable you to walk further. Your husband will just be used to push you back home!

Yes, it's a psychological transition. However, it is better to be in the correct equipment, and be safer than to be trying to get by in a souped up walker that isn't safe or particularly comfortable. Honestly, the neighbors or even society in general think less about it than you do.

For some reason, I've never had a lot of lower body issues. I've always been able to get around OK. However, I have dealt with the "bald stuff" after my reboot. Sure, there were stares and looks, and my daughter endured a few comments at school. However, there were also deep, knowing looks that I shared with other "baldies" I'd meet while out and about. There were the little old ladies who stopped me in the grocery to ask me about "my cancer." I'd explain my situation and then they'd share their stories. Brave stories....stories that touched me deeply. In many ways, it opened up a whole new side to the world. I'm sure your situation would be similar, especially since you are clearly a sensitive person.

And lastly...with MG you just never know! You may need the wheelchair for a short period of time, or a long one. I have a friend who needed one for TEN years, but has been independently ambulating ever since. I think it's important to live in the present and deal with the symptoms you are having TODAY, and not worry as much about tomorrow, or what "so and so" had happen.

Have a great week!

Mike;

24 infusions in 8 weeks? I guess the ones responding to this thread after you posted must have heard about this type of aggressive treatment before but I never had. But I do think we all know the feeling of helplessness.

I hope for your sake, Abby is not correct, "aggressive treatment doesn't necessarily mean improvement". Maybe after the end of these treatments you will see some significant improvement. I certainly hope so. I'm pulling for you.

Tony

Alice, what nutritional supplements do you use?

I apologize for the time it took me to reply. I somehow missed your post.

I take Co-enzyme Q10 and Carnitine and also made some (fairly minor) changes to my diet.

I have MuSK MG and some recent studies suggested that there are mitochondrial abnormalities in this disease.

Incidentally, I have been interested in the role of mitochondrial abnormalities with regards to diseases in my field of practice.

So, when I discussed this with my neurologist, he agreed that it may be a good idea to try those supplements.

Since I started taking them (about three months ago) I see mild, slow, but steady improvement. I have had better periods in the past, so I am cautious in saying that this is the cause, but I do think (and hope) that this is beyond just having a better period.