I was wondering if anyone has experience with whether narcotics make MG worse. As I mentioned in my introductory post, I went about 15 years misdiagnosed. At some point during that time I was put on tramadol for the muscle pain I was experiencing. Eventually the tramadol was switched for OxyContin, and over the years it got increased to 30mg every 8hrs.

I've asked the pain management doctor since my diagnosis if we could try cutting that back, but he doesn't want to make changes until everything else is more stable. I'm afraid that the narcotic might be one of the reasons I'm not stable, however. The problem is that my neurolgist doesn't have much experience with narcotics and is deferring to him as the pain management expert, and he's admitted I'm his first case of MG. I'm not sure if I should get a second opinion or what.