Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 07-04-2015, 06:02 PM #11
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Hi. Sorry, but what is MG?
The last time I read a book was 10 years ago. A few days ago, I tried to read but after only two pages lightning bolts of pain were shooting through my eye and all through back of my head.

Doctors just shrug when I go to them. I don't even know where to turn other than to find what info I can online.
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Old 07-05-2015, 01:54 PM #12
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I was at optomitrist on Monday, I have stick on prism right eye to help DV. Problem is somedays I am worse than others. She suggested patching or frosting one lens during these times and alternating so as not to overwork one set of muscles more than the other. A real pain in the whatsit but if it works I will be first in line.

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Originally Posted by Maiden8680 View Post
I get it real bad with reading (probably how I just set off my latest eye episode ). It depends though, I wasn't even reading very heavily and it strained my eyes. Yet a month or two ago I was reading a LOT more and I was perfectly fine. Maybe it all added up.



PS - thanks for posting that info/link about the scotch tape. Going to try that!
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Old 07-05-2015, 05:07 PM #13
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Quote:
Originally Posted by Seagirl2000 View Post
I was recently diagnosed with MG and wanted to find out if anyone else has trouble reading or eye tracking. Attempting to read causes severe eye pain and worsens the muscle weakness in other parts of my body.

I would really like to know if anyone else is dealing with this problem, I want to go back to college but have no I idea how I am going able to read and study. Thanks!
sea girl my right eye is droppy does the side of your eye on your head hurt ?
tuesday i get my dig from dr think iam get mg/ fibro
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