Annie....thank you! thank you! thank you!

I have (probably) been overdoing it lately and started getting these annoying muscles twitches off and on in the evening. Mostly of eye..but a few in my 'weaker' arm.

I felt like my body needed Mestinon - but was hesitant since I had always associated twitching with too much (never too little) Mestinon.

Anyway, after I read what you wrote on another thread about twitching, I took a half dose - told my hubby what to watch out for in case I was making a mistake - and waited about 20 min.

Voila - NO more twitching!! and I felt so much less floppy!

Now I'll be more aware of what my muscle twitching is trying to tell me.

Thanks!

so yall get muscle twitching even when not on mestion?? Ihave been twitching after muscle exertion for about 4 years... it has worsened as my symptoms have worsened.. never thought this was a MG thing though?

Yep - or at least I do. Quite twitchy since developing MG. Lots of little muscles firing involuntarily. I was told by the specialist I went to that everybody does (MG or not)... we notice our twitches more than other people do because we tend to pay attention to any and all warning signs that the MG is getting ready to kick us in the backside

Sue, I totally missed your post. Duh.

Thanks for your kind words. Many others on the forum have said the exact same thing in the past. I guess I just said it at the right time for you.

I always feel uncomfortable with anyone taking a layman's advice on MG. I always think it's best to have the conversation with your neurologist.

I'm glad it helped. Some people do need that higher or extra dose later in the day to feel better.

Twitching isn't always a symptom of MG. But when you know you have MG, it tends to be one. Though it can be a side effect of certain medications or of electrolyte or fluid imbalances too!

Thanks, Sue. You really are the most sweet and considerate person!

Annie