Abby - this is very good news!! While it may be unfortunate that you have to do most of the 'thinking outside the box'; your neuro gets major points for being so patient friendly!!

One thing that I would encourage you to get into your 'record of symptoms' is what you said in another post about the 'awake sleep' when you were very young. I don't know why I think this, but that symptom may actually cause an 'AHA!' moment for your docs.