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Old 06-20-2012, 08:23 AM #1
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Join Date: May 2012
Location: WI
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restorativepose restorativepose is offline
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restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default Seeking MG specialist in Minneapolis/St. Paul

Hi friends,
Just curious if anyone knows if a good MG doc in the Twin Cities area. If so, please PM me as I believe forum rules don't allow for the sharing of specific doc names here.

I've been to the U of MN neurology dept, who "ruled out MG" based on an AChR test alone. I find striking similarities between my symptoms and MG.

My PCP recently directed me to rheumatology, where I am on the wait list.

If there is a knowledgeable MG person I would even be willing to go out of network for my insurance, in order to work with someone who really knows MG.
__________________
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37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
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