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Old 06-02-2012, 01:04 PM #6
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Linda, You really need to talk to your prescribing doctor about any change in dosing! I don't feel comfortable with recommending any changes for anyone.

My diagnosing neuro (not my current one) does not really like Timespan. The release of dosing can be to "iffy." Since I can only have Mestinon, my MG management plan is different and needs to be consistent.

My body literally wakes me up with either shortness of breath or other symptoms at night. I have a "loaded" syringe of Mestinon syrup at the ready, so I can take it and fall back asleep.

What I do is not what you should follow! You're early on in this process and need to take things relatively slowly, unless your neuro says otherwise. Please give him a call and talk it over.

I'm glad the drug is working for you.

Annie
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