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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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(Thank you for encouraging questions and sharing your experiences in my last post, Annie
![]() I´ve understood we don´t know everything yet but have also realized this place is the closest I´ve been to getting any answers at all. I´m impressed with the wealth of knowledge, experience and clarity of expression that all comes together in this Forum ![]() For want of a better measuring system I almost want to´borrow´decibel units as a measure of intensity in myasthenic weakness...3 stages have occurred in recent years..... (I wrote about my experiences on the´sticky´section if time to read) 1. A four year period of myasthenic weakness in limbs starting at 5 units slowly escalating to 100 units 2. A five day period with sudden freefall down to almost 0 units one year ago (no MG medication) 3. Recent three month period of 20 units (myasthenic activity is down to a whisper but still quietly affecting new areas) Question: Would a simplistic and hypothetical answer be that antibodies (either circulating/tissue bound) are latent/not activated like they were before and are still in the body? (No SFEMG taken and all other tests normal) |
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