Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-07-2012, 09:12 AM #1
kimmyF kimmyF is offline
Junior Member
 
Join Date: Feb 2012
Location: Alberta, Canada
Posts: 49
10 yr Member
kimmyF kimmyF is offline
Junior Member
 
Join Date: Feb 2012
Location: Alberta, Canada
Posts: 49
10 yr Member
Default 4 weeks post Thymectomy

I'm almost all healed up, a little itchy but barley any pain at all anymore! Just when I mop my floors

I saw my internalist yesterday and we decided to keep me on 60mg of Mestinon and IVIG every 28 days, my double vision is back andi have been very weak in my legs and arms since I should have had my IVIG at least a week ago and it always gives me that boost I need.

I got a copy of the letter my neurologist sent to my internalist and he said "that is in a month if I was feeling better I could try and wean myself of my Mestinon, but if I was doing good we would have to start treatment again"

I'm a month post op and wouldn't dream of talking my self of my med's, don't get me wrong I would do the surgery all over again, but I think we should give it more time to see if it has helped at all.

I also see my surgon on June 12 and he will do some tests to make sure he even got all the thymus gland out, then in the middle of August they want to re-check my antibody levels and see where they are at.

I am being treated by the best medical doctor we have in my town, in her 40 year career I am only her third case of MG she has ever encountered, so it's a bit of tril by error, is there any way to know by the antibodies if the Thymectomy has worked? Or any other tests we can do? Or is it just a wait and see?

I have been having a New symptom of memory problem, anyone else have this or is it just that I have sooooo much going on???

I guess with my symptoyms back so bad it could be the weather, this is my first summer with MG

Hope everyone is doing good
Thanks for listening
kimmyF is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
12 weeks post op ACDF cath1 Spinal Disorders & Back Pain 8 05-31-2012 03:57 PM
2 weeks post op acdf kiko Spinal Disorders & Back Pain 3 06-28-2011 07:56 PM
10 weeks post op antler3 Arnold Chiari Malformation & Syringomyelia 0 05-13-2010 11:49 AM
10 Weeks Post MVD thedspeth Trigeminal Neuralgia 7 10-26-2009 09:03 AM
7 weeks post and what i've learned karly Traumatic Brain Injury and Post Concussion Syndrome 1 05-06-2008 04:36 PM


All times are GMT -5. The time now is 12:51 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.