I am prepping for an upcoming appointment this week with my PCP, and discussing next steps with a possible referral to Mayo (which is near me).

In reviewing the blood work my previous Neurology clinic did for MG, it looks like they tested for AChR, but not MuSK.

The lab report shows this:
Acetylecholine receptor binding = 0.2 (0-0.4 = negative)
Acetylcholine modulating antibody = 14 (0-20 = negative, 21-25 = positive)

There's also a CK level noted of 70... which I think is an indicator of muscular dystrophy type illnesses. Says normal range for an adult female is 38-120.

Am I missing something or does it look like they did not test for the anti-MuSK antibody? (Disclaimer: I know this isn't a medical reference site, and I will refer to the PCP's answer, but you guys know more than me so I wanted to ask. Hope that is ok) : )

You are not missing a thing! Perhaps Mayo will decide on expanding the antibody tests.

Another antibody they could check for is LEMS (Lambert-Eaton Myasthenic Syndrome). There are even more antibodies, but AChR, MuSK and LEMS are the first three on the list.

Abby

I just got the blood done for AchR/MuSK Reflexive myself, will know the results in July. I'm guessing if those didn't give my doctor an answer he is looking for, I'll have the LEMS also. Good luck with yours

I'm curious.... has anyone's AChR come back normal, and later (or simultaneously) found out that their MuSK values were off?

Headed to my PCP appointment in a few minutes.

My legs feel so weak today I practically want a wheelchair. I feel like I"m going to fall.

Done with appt, GP is referring me to rheumatologist. Onto a new adventure!