Quote:
Originally Posted by christiemon
I apologize for just popping in here, but I've been doing some unfortunate internet research while I'm doing through some testing. About six months ago I developed double vision. At the time it was only first thing in the morning and again in the evening when I got tired. I'm 33, work full time and have three children, so being busy, I thought nothing of it as it cleared up as the day went on. About a week ago, the double vision got much more severe and lasts almost all day. I can see okay if I only use one eye and cover the other one. Driving was scarey and I'm now carpooling.
When I went into the eye doctor, the first thing he said was "You have a droopy eyelid!" I have on and off for years, only noticable when I"m tired. My husband jokingly calls it my "squinty eye"
No other symptoms really, I get tired but I drink a lot of coffee. During PMS I get exceptionally tired, but I can function.
The eye doctor did several tests on me and is referring me to a neurologist. I met with my PCP and she ordered some bloodwork to look for deficencies but nothing was found. I have an MRI tomorrow and a neurologist appointment on Monday.
Do people with MG have the droopy eyelid for awhile before diagnosis, or does it come on suddenly? Again, I'm sorry for just popping on here, just curious.
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Christiemon,
Wishing you the best with this. Just wanted to add that my MG was finally confirmed, by the symptoms you have. I went to a nuro in 2009, and she ran every test except the one for MG. I continued to have symptoms, droppy eyelids--trouble chewing--some speaking problems, finally 3 years later, I decided to see about eyelid surgery, because it was hard to drive(also some double vision). The eye doctor I went to was knowledgable enough to reconize what was happening. During the eye exam, he said you have MG almost for sure. He sent me to a different Nuro, and 1 blood test and bam, was MG. HIgh antibody count, which meant MG almost for sure. Now I take 3x60mil Mestinon a day. Almost no problems(if any very minor). The wonder pill.
I would say, SEE A NURO, as soon as possible. You sound like MG could be your problem
FREDH
11-20-2012, 02:37 PM
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