I would try and find a French pharmacy to order from and hope it makes it through customs. Just don't order too large a quantity lest they think you're dealing something and I've heard they don't tend to stop people's personal meds. My guess is the worst that'll happen is they confiscate it and you're out the money you paid (don't quote me on that--I'm not a lawyer and don't want to get you sent to prison).

I appreciate all the posts. I am still desperately trying to find Mytelase. Whoever said Mestinon is more expensive in the U.S. has it backwards. Mytelase is much more expensive and now unavailable from Sanofi. I can't give up the fight since I am on my last two bottles and can't function without Mytelase. Can't we force the FDA to make them manufacture enough to support the folks who are still alive and using the drug? Does anyone have new information? Thanks much. ECJ

I have no new information. And frankly I think that is the last Mytelase you will ever see. I am told you can have friends or family purchase it for you in France and bring it into the US for your personal use. I don't think anyone here will be rich enough to make that happen.

there is no way to force them to make Mytelase. They can stop making it for any reason. There really is nothing more we can do.

I am begining to wonder if our time wouldn't be better spent trying to bring Monarsen in early. It is in stage two testing in the UK. My doctor seems to think it should work for me.

So, does anyone have any information on bringing a drug undergoing testing into the US early?

I have the final word. There will be no more Mytelase in the US. It is still being made in France and you can import it for your own use.

I am sorry. The people I talked to did want to provide it. they were very nice and I greatly appreciate all the work they put in on this. In the end it costs to much to make for the few people who take it.

So there is no more Mytelase.

So another thought. Has anyone tried contacting their Senator to see if there is something that can be done that way? I really hate to just give up on this. There just has to be a way to make this medication for those who need it.

It shouldn't be so hard to import it from one of the countries that still make it.