Why don't you write a letter to Michael Pearson of Valeant Pharmaceuticals? CC it to the the head of Alfesa? Ask if they might work together to bring the drug back to the US? Explain how it makes some MGers better than Mestinon.

http://www.alfresa.com/eng/about/concept.html

http://www.valeant.com/about/board-of-directors

It's certainly worth the effort.

Annie

I think someone here should go to the media.... CNN, NYTimes...
how the Big Pharma is leaving MGers in the dust.

Might just turn a tide?

I might do it. I just tangled with Valeant, without good results (Mestinon syrup still tastes like celery, but now with an added clove flavor, not the FDA promised raspberry flavor).

If I have time, I'll take a crack at an article—if my teething puppy will let me. ;)

Annie