Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
NeuroTalk Support Groups > > >

Mytelase discontinued in US

Reply
Page 7 of 7 « First 56 7
 
Thread Tools Display Modes
Old 12-28-2014, 06:01 PM #61
AnnieB3 AnnieB3 is offline
Grand Magnate
  
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default
Why don't you write a letter to Michael Pearson of Valeant Pharmaceuticals? CC it to the the head of Alfesa? Ask if they might work together to bring the drug back to the US? Explain how it makes some MGers better than Mestinon.

http://www.alfresa.com/eng/about/concept.html

http://www.valeant.com/about/board-of-directors

It's certainly worth the effort.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote

advertisement
Old 12-28-2014, 07:05 PM #62
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
  
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb
I think someone here should go to the media.... CNN, NYTimes...
how the Big Pharma is leaving MGers in the dust.

Might just turn a tide?
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (12-28-2014)
Old 12-28-2014, 08:44 PM #63
AnnieB3 AnnieB3 is offline
Grand Magnate
  
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default
I might do it. I just tangled with Valeant, without good results (Mestinon syrup still tastes like celery, but now with an added clove flavor, not the FDA promised raspberry flavor).

If I have time, I'll take a crack at an article—if my teething puppy will let me.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Reply
Page 7 of 7 « First 56 7

Tags
mytelase

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Morton Epsom lotion and CVS Epsom lotion discontinued! mrsD Peripheral Neuropathy 36 01-16-2016 10:06 AM
Mytelase Chloride (ambenonium) scrubbs Myasthenia Gravis 14 12-24-2012 02:28 AM
Discontinued from my pain management Dr Swatgen27 Reflex Sympathetic Dystrophy (RSD and CRPS) 5 05-15-2011 05:16 PM
oxycontin discontinued rsdpoppa New Member Introductions 2 02-22-2011 02:04 AM
CDB323 trial discontinued Riverwild Multiple Sclerosis 1 06-30-2009 06:12 PM


All times are GMT -5. The time now is 05:19 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home