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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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I made my call. this time I was listened to.
I wonder if making a Facebook page asking Sanofi to save Mytelase for the few patients who need it might help. I worry about the elderly people who take it and are not wired enough to get help with their drug being taken away. |
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"Thanks for this!" says: | Mytelase_Alliance (12-24-2012) |
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#2 | ||
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Junior Member
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Quote:
I agree that creating an online advocacy group ** is a good idea. In the meantime, let's continue to be active in this forum to share information. Maybe we can submit a group request to the Myasthenia Gravis Foundation to act on our behalf. Maybe there is some legal remedy we can take with their help to insure our access to this necessary medication. Let's keep working together here and pushing forward! Last edited by Chemar; 12-24-2012 at 09:18 PM. Reason: Neurotalk Guidelines |
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