I really want to start a support group in my town.

I realized that most of us are fighting this alone, and that loneliness and frustration is affecting our MG.
(this site & all of you have made a gigantic difference in the way i view my life and my fight with MG.) so imagine what two people who are face to face can do for each other and others in the community.
i can't be the only one in this town with MG.

So my question is... does anyone know how to start one? what needs to be done?


I feel like i have to make a difference.

That's wonderful that you want to start a Support Group sunshine! Have you checked the National Myasthenia Gravis Foundation to see if there's already a support group in your city? There is a MG support group in my city and several other cities in my state. I found out about them several years ago through the National Myasthenia Gravis Foundation.

I would go to the National Myasthenia Gravis Foundation website to see if there is a Florida MG Chapter that you could contact to see if a support group is already set up. If not, then maybe they can give you some information as to how to go about setting one up.

Good Luck

***EDIT*** I went to the site and see that they have a MG chapter in Greater FL. The link is below.Click on that and it lists the different Support Groups in FL. I hope you find one close to you!http://www.myasthenia.org/Livingwith...AChapters.aspx

Shari_W:
Thank you for the information. It seems like the greater Florida chapter is in seminole Fl, about 2 and a half hours from where i live. That is too long of a drive for me.
I will definetely try to contact them to see how i can maybe help create one here in fort myers!

Thank you.







[QUOTE=Shari_W;891073]That's wonderful that you want to start a Support Group sunshine! Have you checked the National Myasthenia Gravis Foundation to see if there's already a support group in your city? There is a MG support group in my city and several other cities in my state. I found out about them several years ago through the National Myasthenia Gravis Foundation.

I would go to the National Myasthenia Gravis Foundation website to see if there is a Florida MG Chapter that you could contact to see if a support group is already set up. If not, then maybe they can give you some information as to how to go about setting one up.

Good Luck

***EDIT*** I went to the site and see that they have a MG chapter in Greater FL. The link is below.Click on that and it lists the different Support Groups in FL. I hope you find one close to you

Sunshine,
They have one in FT Myers! After you click on Greater Fl then you need to look to the right and click on "Support Groups". They have several listed and I see one for FT. Myers. I copied the info for you below:

Fort Myers Support Group


Keep an eye out for our schedule.

All meetings are held at 7:00 p.m. at
Lee Memorial Hospital
2776 Cleveland Avenue (US 41)
Fort Myers, Florida, in MED 3
Conference Room

Contact Marie Ronnlof at
727.596.1491 or
1.877.596.1491 (toll free)
tronnlof@verizon.net or
Jerry Melaugh at
239.433.3277

Hope you can find out more by contacting the person above