My 13 old is currently being tested for MG. She is seronegative but has had a inconclusive/ mildly postive EMG. (there was equipment issues with her test, so the baseline was difficult to keep steady)

The Pediatric Neuro specialist decided to to a Mestinon trial and has her on 60mg 3 times a day. After her noon dose today (2nd does for the day and this is our first full day) she is saying she feels shaky and sometimes her heart beat is pounding a little. She went out to play and was dancing with friends and got really shaky and came in I have made her rest and she is feeling less shaky. It is about 2.5 hrs after her dose. I have a call in to the neuro nurse but am wondering if anyone else has experienced this.

There also does not seem to be marked improvement of her eye droop which is her primary symptom right now. Any improvement is very slight.

Thank you for your time.

Dawn