[natsibee]

i lived with severe MG for 25 years b4 accepting help from the medical profession. i had a transsternal thymectomy in june 2011 and i have never recovered. My dangerous symptoms have never returned ie talking, swallowing and choking problems, but ive suffered with muscles seizing up and causing extreme pain and migraines. My gp doesnt know what to think and suggested i talk to my neurologist about the posibility of the weakness of my muscles may be prohibiting me from healing. The neurologist was fresh out of uni and insisted that would not be the case. She then proceeded to tell me a heap of very basic nfo about MG. I think she probably did a 3 hour tutorial on it in her first year! Im back on the waiting list hoping for a better doctor next time. I have tried the meds but they made me very weak and tired and symptoms started in my arms for the first time ever so im not taking anything now. I suffer daily with pain in my therasic spine area that started the day of my thymectomy. I am very weak, ive had to resign from my job and go on the pension. I spend my time on the couch trying to get comfortable. I wonder if anyone else has a similar problem?

[suev]

Welcome! So sorry you are having trouble finding a doc you like. What meds have you tried?

[natsibee]

Hi Sue, prednisolone pyridogstigmine and mestinon. Im having a similar conversation on another thread if you'd like to join? Its called Medication free with MG