Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 07-11-2012, 03:58 PM #1
paulie04 paulie04 is offline
New Member
 
Join Date: Jul 2012
Posts: 2
10 yr Member
paulie04 paulie04 is offline
New Member
 
Join Date: Jul 2012
Posts: 2
10 yr Member
Confused Frustrated

Hi, I'm a new member who is still trying to figure out if I truely have MG. I have double vision with ghosting although it only happens in the am usually after I have been out of bed for approx. one hour otherwise my eyes are fine. This does not happen everyday. Although it can be for 1-2 days in a row or 10 days. It varies dramatically. At the time of the double vision I have dry mouth along with some sluured speech and difficulty verbalizing words at times. I am also having difficulty with memory at times. My balance can be off usually during time of episode. I do have fatigue that usually accurs later in the day. I have had MRI which shows four lesions on my brain which has not changed in two years. Spinal Tap shows minimal elevation in antibodies. I have seen a neuro optalamologist in Boston who states I have no problems with my eyes neurlogically. I have also seen an ear, nose and throat MD thinking maybe it is an inner ear problem. My neurlogist states she is unable to dx. me as she feels it may also be MS. I have been out of work as I'm unable to drive at this point. Does anyone have any of the same problems. I am well aware that with MG symptoms usually occur as the day progresses but I am very confused.
paulie04 is offline   Reply With QuoteReply With Quote

advertisement
Old 07-11-2012, 04:28 PM #2
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
10 yr Member
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
10 yr Member
Default

I'm sorry to read of your issues. The fact that you have lesions, plus your symptoms of memory issues and balance problems does look more like MS than MG. The lesions especially are indicative of MS, so I'm a little confused about why the doctor "can't" diagnose you.

Have you posted on the MS board? They may be able to answer some questions for you.

Good luck and don't give up looking for answers!
4-eyes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
paulie04 (07-13-2012)
Old 07-11-2012, 06:41 PM #3
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default

Hi and welcome.

I agree with the previous poster about checking out the MS board. I was on there for a while and always had many replies within a couple hours of posting. Also they're really big on the "thanks!" button (FYI)

It's unusual for those of us going through the diagnosis process to have leisons on the brain and continue to be considered as MG suspects.

I think for most of us with MG symptoms, the MRIs come out clear as as whistle. But of course, continue posting here and anywhere, and ask as many questions as you'd like : )
__________________
.................................................. ...........
37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
.................................................. .............
restorativepose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
paulie04 (07-13-2012)
Old 07-11-2012, 09:47 PM #4
jana's Avatar
jana jana is offline
Member
 
Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
jana jana is offline
Member
jana's Avatar
 
Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
Default

I have a spot(s) on my brain -- the report says that demylenation (sp?) could not be ruled out. I'm totally positive on my MG bloodwork, too -- Modulating, Binding, and Blocking antibodies. I did a lot of research trying to figure out WHY I had the spot(s) -- some sites said that spots were possibly due to migraines. My MRI hasn't changed, either -- no growth in my spot(s).

I've had the dizziness/balance issues with the double vision. NOT fun! I've also had some memory problems -- worse when I'm in exacerbation.

Hard to tell IF you have MG or MS or something else. Some of your symptoms ARE common in MGers. You are probably gonna have to see a specialist.
__________________
~jana
jana is offline   Reply With QuoteReply With Quote
Old 07-12-2012, 05:44 PM #5
huntress huntress is offline
Member
 
Join Date: Jul 2012
Posts: 104
10 yr Member
huntress huntress is offline
Member
 
Join Date: Jul 2012
Posts: 104
10 yr Member
Default

hmm, get an appointment to see a neurologist and make sure there good. Your symptoms sound like both MG and MS. I have MG and dont have any spots on my brain, they did a ct brain scan because i hit my head really really bad. Keep us informed. And my Prayers are with you.
huntress is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
So Frustrated... kasey21 New Member Introductions 5 07-18-2011 01:22 AM
So frustrated.... Erin524 The Stumble Inn 10 04-22-2011 12:06 PM
Very Frustrated! momw/rsdchild Reflex Sympathetic Dystrophy (RSD and CRPS) 21 02-28-2011 02:28 PM
So frustrated.... coletaterbug Multiple Sclerosis 7 04-11-2009 09:18 AM
frustrated sherbear64 Multiple Sclerosis 10 03-05-2009 07:08 PM


All times are GMT -5. The time now is 10:23 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.