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-   -   thymectomy monday (https://www.neurotalk.org/myasthenia-gravis/173501-thymectomy-monday.html)

southblues 07-26-2012 11:27 AM

I hope you get better soon.

wbdolphin 07-26-2012 04:08 PM

Glad to hear you're doing well. Once the chest tubes come out you'll feel so much better. Hope you're being a patient patient!

jamh1 08-08-2012 08:19 AM

im home now and continuing to improve. Overall the pain has not been too bad. sleeping is not too easy. i did buy a large wedge pillow that i sleep upright on, that helps keep me on my back as well rather than rolling onto my side which is not allowed. Not sure about my mg symptoms except that nothing got worse and that my neuro has dropped my prednisone dosage since ive been discharged from the hospital which is great. i hate that stuff. my scar is large but not awful and aside from being limited with what i can lift and do i feel pretty good. hoping to see some more improvement in mg symptoms as i continue to wean off of prednisone.

Brennan068 08-08-2012 08:29 AM

Glad you're getting better. Regarding your MG symptoms... keep in mind that it is typically a long term fix if it fixes it for you. Most people for whom the thymectomy works don't see the full impact of it for a year or two. I hope it does help you lots; I wouldn't want you to get disappointed when improvement comes slowly though.

BackwardPawn 08-12-2012 08:53 PM

Quote:

Originally Posted by jamh1 (Post 898892)
yup, monday is the day. transsternal with thymoma.
im trying to think positive thoughts. thinking of getting off of prednisone is a positive thought. im currently on 60mg one day/40 mg the other and mestinon.
i wont get to see my adorable little five month old baby while im in the hospital :( or pick her up when i get home.
wish me luck(please) . feel free to share advice!!
:eek:

Good luck tomorrow...hope everything goes well.


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