Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Closed Thread
 
Thread Tools Display Modes
Old 07-28-2012, 11:24 AM #11
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
Default

Quote:
Originally Posted by southblues View Post
To tell sick people to stop taking all drugs is selling something.
It is selling a philosophy. One that can be hazardous.
Some of us will die without drugs.
If the MG doesn't get me, the hypertension will. No drugs. No me.
the Gestapo Nazi FDA police.

War on Health - Gary Null's documentary exposing the FDA

search it out on youtube.

still dumping that fda double blind placebo manipulated results poison in your arm..........?

think again.
shopster is offline  

advertisement
Old 07-30-2012, 01:42 AM #12
alice md's Avatar
alice md alice md is offline
Member
 
Join Date: Sep 2009
Posts: 884
10 yr Member
alice md alice md is offline
Member
alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
10 yr Member
Default

Yes, think again...

What you do not understand is that people who use those kind of arguments stand in the way of those who truly want to make constructive changes.

When serious people discuss the importance of nutrition, the effects of exposure to toxic substances in the environment, the wide-spread use of genetic engineering and synthetic food to animals in agriculture, they are seen as belonging to the same group of lunatics who put those movies on you-tube.

modern medicine has saved and prolonged the lives of numerous people from birth to octagenerians. Diseases that were once lethal can be put under good control for many years.

But, progress has its price, and no doubt that greed also plays a role in the turns the practice of medicine took over the years.

Regulation in general is complex. who, how and when should regulation be implanted. this is true for food, medications, movies and weapons.
Regulation means that the individual may pay a price in his freedom for the benefit of the entire community.
Also, there is always the risk that you will be putting the cat to guard the cream. The thought that disclosure of conflicts of interests solves the problem is indeed quite naive and extremely misleading. I for one, am very suspicious regarding studies in which the authors disclose being paid consultants of the same company which produced the study drug.

Even on the internet, some sites put an emphasis on freedom of speech and others put more emphasis on protecting the members from disinformation.
Each of those approaches has its prices and benefits.

As to the risks and benefits of modern medicine, I have a bigger and more balanced picture than you. Like you, I have mostly been harmed by certain treatments and medications. At the same time, as opposed to you, I realize that I belong to the small minority who have a paradoxical response to a medication which is very effective for many people.

The physician who gave me this medication and insisted that I keep on taking it, had a very black and white view in which all patients could only benefit from this treatment and if I "feel" that I am doing worse it is because of some fault in my character which prevents me from understanding that I am much better and near remission.

You, on the other hand, have the mirror image of that black and white view by which no patient could benefit from such treatment.

William Osler said-the more the ignorance, the more the arrogance. *edit*

The reality is that every treatment (natural or synthetic) can lead to benefit or harm, and one has to cautiously weigh one against the other in the specific patient so that the optimal management approach can be found. Physicians should not make decisions based on pamphlets given to them by drug reps. but on careful and critical reading of the pertinent medical literature.

Both your black and white approach and his black and white approach lead to harm and the exact opposite of what you want to achieve.
Physicians like him lead to people understandably lose their trust in modern medicine, and people like you lead to understandable doubts regarding other management approaches.

This, instead of combining the best of both worlds.

In this forum there have been serious, balanced and fruitful discussions regarding conventional medical interventions, avoidance of toxic substances (keeping in mind that one man's food can be another man's poison) and nutritional interventions.

Some patients here has significant improvement with very aggressive treatments , others have found various natural remedies more helpful and yet others have found the way to combine both. Myasthenia is a very complex disease, and can't be managed with a "one size fits all" approach.

I am glad that you have found what works for you.

Possibly, if you would share with us the specifics of your treatment, it may help others as well.

Telling people to stop trusting their physicians and the treatments they are given will not be helpful and may cause potential harm.

Last edited by Chemar; 08-02-2012 at 06:16 AM. Reason: NT guidelines
alice md is offline  
"Thanks for this!" says:
Brennan068 (07-30-2012), pingpongman (07-30-2012), rach73 (07-30-2012), southblues (08-02-2012), Stellatum (07-30-2012), StephC (08-03-2012), suev (07-30-2012)
Old 08-01-2012, 09:23 PM #13
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
Default

Alice,

not one synthetic drug ever invented in a lab helps the human metabolic process to build new cells and move you forward to better / improved health.

all drugs slow the process down and also surpress the immune system.

drugs mask symptoms and do not get to the root cause of the issue.

the side effects warning is always 2 pages deep and death is usually one of the options listed.

run synthetics in the blood stream so the liver can slowly become toxic and the game is over.

if the disease doesn't kill you , drugs will over time.

it is not all black and white, but this much is true.

north american society thinks the white coats have the answers and the big pharma powders are the cure.

just make the pain go away.

modern medicine today is a script pad in your back pocket and a set of golf clubs in the trunk of the merc. with wed. afternoons off.

" ask your doctor if this poison is right for you............"

when i play golf with these guys and they are not bad people, i always ask about the corruption in big pharma and the fda.

the answer is always the same...........
a round of silence.

so i move on.

s
shopster is offline  
Old 08-01-2012, 09:43 PM #14
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
Default

i asked two smart young neuros running separate MG practices at 2 Canadian teaching hospitals what they thought of predisone.

answer:

it is one of the nastiest drugs on the planet.

my second question......

would you personally ingest this drug if you had MG.............?

answer: no comment.

playing thru.

s
shopster is offline  
Old 08-01-2012, 10:58 PM #15
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
Default

Quote:
Originally Posted by alice md View Post
Yes, think again...

William Osler said-the more the ignorance, the more the arrogance.
**
there is no science to back up the false claims,skewed / twisted placebo trials blattant lies and deceit of big pharma.

when i get to the magic 10 count, a legal link from a washington lawyer who has taken on arrogant big pharma and won 7 times will show how rampant and deep the corruption actually runs.

s

Last edited by Chemar; 08-02-2012 at 06:17 AM. Reason: quoted post has been edited as per NT guidelines
shopster is offline  
Old 08-02-2012, 03:46 AM #16
alice md's Avatar
alice md alice md is offline
Member
 
Join Date: Sep 2009
Posts: 884
10 yr Member
alice md alice md is offline
Member
alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
10 yr Member
Default

All I can say is that, sadly modern medicine has become the victim of its own success.

Because of the enormous advances: the cure of previously incurable diseases , the prolongation of life (turning previously fatal diseases into chronic diseases) and even prevention of some potentially fatal diseases there are unrealistic expectations (of physicians, patients and lawyers) regarding its abilities.

Those unrealistic expectations lead to numerous unwanted consequences.

As you did not share your personal experiences, I can only guess what made you lose your trust in modern medicine and turn to other treatment options.
You are one of many (physicians and patients) who are unhappy and frustrated with the current health care system.

Quote:
i asked two smart young neuros running separate MG practices at 2 Canadian teaching hospitals what they thought of predisone.
As I did not personally speak to those neuros I can't comment on what they said or how smart they are.

No doubt that corticosteroids (which is by the way a completely natural substance produced by our own body, but given in much larger doses) have significant side effects. At the same time those are well-known and can be recognized and addressed. When used wisely this medication can save lives.
When used unwisely, it can lead to serious harm. But, this is true for any substance (natural or synthetic) that has pharmacological properties.

Quote:
not one synthetic drug ever invented in a lab helps the human metabolic process to build new cells and move you forward to better / improved health.
This is utter nonsense. There are numerous such substances that have saved many lives. Furthermore, a drug does not have to help the metabolic process. It has to effect what has disrupted it. The body can then heal itself.

If you seriously want to criticize and possibly improve the practice of medicine, you have to learn what you are talking about. No one is going to take what you say seriously if you have no serious data to support what you say.
alice md is offline  
Old 08-02-2012, 09:56 AM #17
teresakoch's Avatar
teresakoch teresakoch is offline
Member
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
teresakoch teresakoch is offline
Member
teresakoch's Avatar
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
Default

Shopster, do you actually HAVE Myasthenia Gravis?

I KNOW the downside of Prednisone, but for me personally, the benefits of the job that it does to suppress my immune system to the point that it slows the progression of this disease far outweigh the side effects of the drug (I am also taking a low enough dose that the side effects are minimal).

For most MG patients, it is a delicate balancing act, but we all make an INFORMED choice. Last time I checked, it's a free country, and we are allowed to make our own decisions.

My doctor has let me know what the risks of taking Prednisone are, and she is very careful to monitor my health so that if a problem does crop up it can be taken care of. I know what I feel like when I take it and when I am off of it, and for me PERSONALLY, I know which one I prefer. I cannot presume to tell anyone else what is "right" for them, and neither can you.

Forgive me for saying this, but from the tone of your posts, it almost sounds like you are trolling for malpractice clients....
teresakoch is offline  
"Thanks for this!" says:
pingpongman (08-02-2012)
Old 08-02-2012, 02:00 PM #18
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
Default

Shopster, you are entitled to your opinions as is everyone else on the board. But you sound so angry! Does it derive from some negative personal experience or a vendetta of some kind?

I do hope you have other things going on in your life that bring you genuine pleasure and joy. I also hope that your body never requires (or would benefit from) pharmaceuticals as it would undoubtedly be huge drama for you.
suev is offline  
Old 08-02-2012, 02:33 PM #19
southblues's Avatar
southblues southblues is offline
Member
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default

With any treatment option, you have to weigh the risk versus benefits. My cousin felt the same way that you do about drugs. She stopped taking her blood pressure medicine and started relying on herbal remedies to make her healthy. Well, this plan didn't work out so well for her. She died quite suddenly as a result of uncontrolled hypertension. Rather than enjoyinging her retirement, she is dead. Her husband is enjoying the benefits of her retirement with his new wife that is 20 years his junior.
__________________
Celeste

Last edited by southblues; 08-02-2012 at 02:58 PM.
southblues is offline  
Old 08-02-2012, 02:37 PM #20
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
shopster shopster is offline
Banned User
 
Join Date: Jun 2012
Location: Canada
Posts: 43
10 yr Member
Default end game..........

the tome.

i have MG.
muscular and occular.

it has been 18 months since the computers were hooked up to my body and the testing was done in 2 diff. MG labs in Canada by 2 of the best neuros in the country running clinics for said issue.

woke up one day with double vision, could hardly sit up and felt like crap.
droppy eyelids x 2
repetitive motion with the legs or arms was almost non existent.
pins and needles / tingling in my arms and fingers.
both hands were pretty well useless.
very sensitive to heat and all bright natural or indoor lighting.
bending over was impossible without fainting.
jaw for chewing was not firing on all cylinders

the family doc had no clue.
the eye doc could not find anything wrong.

so we hit the net and self diagnosed it until big medicine could slot me in.

got it narrowed down to MG or MS.
went for body scans to check out the brain for lesions and the thymus for growths.
no lesions, so i ruled out MS.

single fibre emg tested positive.

next up, the 2 hour full lab testing connected all the dots.

i was fit, active and eating mostly organic before the MG trainwreck put me flat on my back.

both the neuro lads whipped out their script pads and went to work.

the " pred. and mest. dynamic duo" was instantly prescibed x 2 to blast my weakened immune system even further with a smack up the side of the head for good measure.
hit him while he is down.
the neuro's answer to life.

i even offered to have their " script pads preprinted with the toxic cocktail " so they would not waste time or pen ink for the next MG victim coming down the pipe.

already did the homework on the toxic powder about to be prescribed and knew the side effects list by memory.

a side effect of death was a big turn off.

so was cataracts, weight gain, facial swelling, blurred vision on top of the double MG vision, insomnia, cushing's , possible infection issues , depression et al.

steroid induced osteo was another no no.

and the hits keep coming.

i have degrees in science and business.
was a bootstrap startup guy for vencap and an angel investor since 1982.

i also have over 3 decades of forex, equity and futures trading.

i had time to research MG and the funds required. getting to the truth was the focus.

in trading financial markets the retail herd always gets slaughtered.
it is all smoke n' mirrors.

professional money is always unloading product to retail players.
just the way it is....

the defacto standard in medical disease management is the same.
sell the poison to retail, en masse.

a pharma owner once said..........
" we are not into heath care but we can do disease management very well..."

"ask your doctor if this poison is good for you........."

unbelievable.

got nothing new in the chemical pipeline...............?

crank up the lab rats for a new submission along with a cheque for $860M and run it over to the feds.

in the meantime, start skewed placebo tests and only submit corrupted data
.
there is no third party to refute your claims so we trust you to tell the truth.........

a 6 week period is all that is required to see if anyone drops over from immediate liver failure and the third world is a great place to pick up bodies for the first round of 2 legged testing.

.................................................. ......

knowing all of the above, i went to work to get stabilized, sans the chemical cocktail.

once you start down that rabbit hole you do not get an exit pass.

first up..........

i had both neuro scripts mounted and framed.
they now hang on my office wall
never to be handed to my brother in law, the local retail pharma king.

he told me without the meds i will surely die, i told him he could have the merc. and the harley's if i do.

i also phoned in my cancellation for the 6 week return clinic visits to the lads.

they both said they expected to see me wheeled in on a gurney if i did not heed the medical protocol prescibed.


second........

i studied Gerston therapy on plant food raw therapy and phyto nutrient chemistry.

also found 2 other lads my age.

both approx. 60 years young who were cured of MG on their own terms without the use of the suspect white powders.

fired up the lear and did a face to face to dig into the nuts and bolts of the game plan.

third ...........

did a 180 reverse on all north american nutrition.

bought a new vitamix and a gear driven juicer.

i dumped all meat, coffee, wheat, gluten, soy, corn, refined sugar, and dairy.
no processed anything.

nothing baked, fried or bbq'd.

anything cooked past 118 deg. F and all the enzymes are toast.

nothing from a takeout window or in a box.

i went full organic and raw.

apple cider vinegar and extra virgin olive oil was the dressing.

75 % simple carbs and 25% protein was the mix.
almonds , walnuts, chia, hemp and ground up flax seed.

rice milk , frozen organic fruits .

big bags from costo and locally picked in season.
keep the freezer full.

" vega and sun warrior " both plant based protein powders with no issues.
search 'em out.

" whey " protein powder is a no no.

.................................................. ......

the low spot was 3 months in .
was almost ready to pack it in and cave for acidic powder

then the juicing of veggies and the salad cart 3 x per day, started to kick in.

slowly got more stamina
more sit up hours,
more waking hours
the droppy eye lids slowly started to return to normal function.

i started to walk with less help and to get right hand function back

repetative motion in ther arms and legs, slowly returned.

20 lbs of weight dropped off over 6 months with zero effort and i was not overweight to start.
my body found its own weight balance.

9 months
i was walking with very little help.
( my gait is still not a perfect alignment.)

the double vision straight on and to the left slowly started to fade at 12 months.
i still see double to the extreme right side .

currently i can walk unaided for 2 miles, ride a bicycle for 30 minutes on the flat and do arm strength exercise on a levered home gym.

am i totally back to full speed.......?
no.
but damn close.

you have to feed the body raw and organic alkaline fuel, drink a ton of water , get the gut flushed out with a hose , get off any and all toxic powders over time if you wish to get to the finish line.

you can see the flag waving in the distance.

once you are raw, you never go back.

the standard NA diet is all toxic , eating Montsanto GMO grains and glowing in the dark.

i do know some excellent malpractice attoneys if you ever need one......


s


" Skate to where the puck is going to be ......."
wayne gretzky
shopster is offline  
Closed Thread


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
From evidence-based to Marketing based medicine olsen Parkinson's Disease 1 01-29-2010 11:50 AM
OT : Chewing gum habit 'poisons' woman Birdbomb Epilepsy 5 06-23-2007 12:57 PM


All times are GMT -5. The time now is 06:12 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.