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-   -   Thymectomy or not (https://www.neurotalk.org/myasthenia-gravis/173898-thymectomy.html)

FREDH 07-29-2012 05:38 PM

Thymectomy or not
 
Thanks Southblues,

That is my feelings also, and i,m sure will be the answer. thanks for your support to help me decide this. I,m sure that is what I will do

Thanks
FREDH

cjrusso 08-04-2012 07:43 AM

Thymectomy
 
FredH,
I was diagnosed with MG in Feb 2010, had eye, throat problems. Could not swallow apple sauce at one time. I was 66 at the time and mestinon was working pretty well for me but decided to be more aggressive with this thing so had the surgery (VAT procedure). The first 17 or 18 months after surgery I noticed little difference but the first of this year, 2012, I noticed a big difference and have not taken any mestinon since Jan. I did not want to take any of the other drugs used to treat MG and that was the basis for my decision to go with the surgery...it's worked out for me, but I would suggest a VATS procedure to minimize the recovery.
Chris

southblues 08-04-2012 08:20 AM

Chris, if I had any hope of being normal without drugs, I would have surgery. I am just dubious about it working. Thanks for sharing.


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