NeuroTalk Support Groups

Quote:

Originally Posted by lawgirl (Post 904532)

Hi all,

I'm new here, nice to 'meet' you :)

I'm a 25 year old from London who has just been officially diagnosed with MG after a hellish 18 month period of horrible symptoms. My blood test was positive for antibodies once, and negative the second time (go figure!). SFEMG was clear.

I'm being started on Mestinon and I'm really nervous having read that if you take too much, or don't actually have MG, Mestinon can put you into cholinergic crisis... I can't shake the idea that maybe the neuro isn't right with this diagnosis, so I'm a bit frightened of the medication. I'm meant to start on 30mg once a day, as of tomorrow. Presumably this is a relatively small dose...

Do you know what effect, if any, the Mestinon would have if I didn't have MG?

I realise this probably sounds crazy, but this whole situation has turned me into a bit of a worrier!

Thank you :) x

Good morning

I am not officially diagnosed but after many years of symptoms and 4 months of severe issues, culminating with admission to ER on 7/30/12 due to breathing issues I am thrilled to update my earlier post that i was given one 60 mg day which had helped but only for couple hours and reply to your concerns.

I finally have a
great neuro (he is chair of neuro dept at florida med school). It was him who originally suspected MG. he has now started me on 60 mg every 2-3 hours as tolerable up to 6 per day and it has helped wonders...although I am not my old self (I don't think that I ever will be?
The ONLY side effects I have noticed is occasional itching.

Stephanie