Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-29-2012, 08:34 AM #1
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default EMG... on the face??

I've had an EMG on my right side arm, leg, and hand. Now I'm seeing a new MG specialist who wants to do one on my face.

Even he said "It's a little painful because it takes about an hour".

When a dr admits in advance it is painful, it makes me wonder.

Have any of you had this facial EMG? I'm thinking of calling and asking if I can take tylenol or something ahead of time to help with the pain during the procedure.
__________________
.................................................. ...........
37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
.................................................. .............
restorativepose is offline   Reply With QuoteReply With Quote

advertisement
Old 06-29-2012, 09:02 AM #2
mw3kgt mw3kgt is offline
Junior Member
 
Join Date: Oct 2011
Posts: 12
10 yr Member
mw3kgt mw3kgt is offline
Junior Member
 
Join Date: Oct 2011
Posts: 12
10 yr Member
Default

I didn't even feel the SFEMG they did on my forehead, now the one in my shoulder that hurt a lot.
mw3kgt is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Old 06-29-2012, 09:21 AM #3
schavarria schavarria is offline
Junior Member
 
Join Date: May 2011
Location: Champaign, IL
Posts: 47
10 yr Member
schavarria schavarria is offline
Junior Member
 
Join Date: May 2011
Location: Champaign, IL
Posts: 47
10 yr Member
Default SFEMG on face

I recall discomfort but not pain when the doc did the SFEMG around my right eye.
schavarria is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Old 06-29-2012, 10:50 AM #4
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default

Don't be afraid of it. I had two SFEMGs on my arms and legs, and then a third on the face. I found the one on the face hurt less than the arms and legs ones. Also, the one on my face was conclusive, whereas the first two (arms and legs) were borderline. I thought this was weird, because I was having a lot of trouble with muscles in my arms and legs, but no trouble with muscles around the eyes. Maybe the face SFEMG is easier to read or something.

Abby
Stellatum is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Old 06-29-2012, 11:17 AM #5
DawnMcD DawnMcD is offline
New Member
 
Join Date: Jun 2012
Posts: 3
10 yr Member
DawnMcD DawnMcD is offline
New Member
 
Join Date: Jun 2012
Posts: 3
10 yr Member
Default

My 13 yr old had it done on her face Tuesday. Both near the eyes and on her nose. She said it was uncomfortable but did not really hurt.
DawnMcD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Old 06-29-2012, 12:51 PM #6
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default

Hello Restorativepose

Just a quick visit through here and saw your post and remembered something that a neurophysiologist said to me during a consultation.

He said that when I got back to my own country I should have an SFEMG on the frontalis muscle because that is the most sensetive.
DonŽt know which facial muscle youŽll have though...

Will check by someday see how it went

A.
Anacrusis is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Old 06-29-2012, 02:08 PM #7
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default

Thanks everyone. It's interesting... You are all using the term SFEMG (single fiber, I know), but the doc said he hasn't yet decided if he's going to do the SFEMG or not. Perhaps I'm confused and he decided to do it after all, and this is it.

Seems pretty telling to me how much improvement I am seeing after starting on Mestonin this week.

On an unrelated note, check out this video of the new doc. He is an accomplished musician in the world of Indian music. My dr is the one on the right. Pretty cool, his level of medical + musical mastery.

(go to about 2:20, after he's done talking)

http://youtu.be/UfoMoMwQDG8
__________________
.................................................. ...........
37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
.................................................. .............
restorativepose is offline   Reply With QuoteReply With Quote
Old 06-29-2012, 05:11 PM #8
DawnMcD DawnMcD is offline
New Member
 
Join Date: Jun 2012
Posts: 3
10 yr Member
DawnMcD DawnMcD is offline
New Member
 
Join Date: Jun 2012
Posts: 3
10 yr Member
Default

My daughters Did not have a single fiber emg. She had an external one on her face.

I am so glad the medicine seems to be working for you!
DawnMcD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-29-2012)
Old 08-20-2012, 02:14 PM #9
oobadooba oobadooba is offline
Junior Member
 
Join Date: Aug 2011
Posts: 15
10 yr Member
oobadooba oobadooba is offline
Junior Member
 
Join Date: Aug 2011
Posts: 15
10 yr Member
Unhappy Emg

Yes, I had this done to me and the Dr. didi warn me as well that it is painful!!!! He just asked me my pain level! I said ZERO!!!!! This was the final test that determined I had MG only in my eyes though. It did start generalizing into my body! I started taking Mestinon for my eyes, now i'm on Pred & IVIG treatments!! Just ask your Dr. if you could take some kind of pain reliever. Good Luck!!!! Good Luck!! Oobadooba
Quote:
Originally Posted by restorativepose View Post
I've had an EMG on my right side arm, leg, and hand. Now I'm seeing a new MG specialist who wants to do one on my face.



Even he said "It's a little painful because it takes about an hour".

When a dr admits in advance it is painful, it makes me wonder.

Have any of you had this facial EMG? I'm thinking of calling and asking if I can take tylenol or something ahead of time to help with the pain during the procedure.
oobadooba is offline   Reply With QuoteReply With Quote
Old 08-20-2012, 03:27 PM #10
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Default An hour? The frontalis, levator?

I finally had an EMG on my face this year, but this thread is making me question the results.

1. It's supposed to take an hour? My total EMG with arms and legs and face took less than half an hour, and he only spent maybe 5 minutes on my face. He said he was checking for both myasthenia and myotonia.

2. He did not do anything directly on my eyelid, the equipment was placed at the facial nerve behind the ear and on the portion of the orbicularis muscle directly to the left of my left eye. Should there have been direct stimulation to the eyelid or the forehead?

I was told my results were normal. Based on anything above, should I be doubtful?

Tatia
Geode is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I came face to face with my disease yesterday, and it scared me. beautytransforming Multiple Sclerosis 21 05-05-2008 02:32 AM


All times are GMT -5. The time now is 08:29 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.