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Old 08-27-2012, 11:41 AM #1
Stellatum Stellatum is offline
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Default IVIg without the IVIg

I have prescribed a three-day course of IVIg-less IVIg for myself, to be administered at home without the IVIg. In other words, I am confining myself to my bed and easy chair for three days, with only as much up-and-around as I could manage if I were pulling along an IV pole.

I am sure that the enforced rest of getting infusions isn't the only benefit I've received from real IVIg, but I think it may be a part of it. So.

I realize most people aren't in my happy position of being able to declare a three-day rest like this. I'm counting my blessings (and recruiting my children).

Abby
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Old 08-27-2012, 01:37 PM #2
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Quote:
Originally Posted by Stellatum View Post
I have prescribed a three-day course of IVIg-less IVIg for myself, to be administered at home without the IVIg. In other words, I am confining myself to my bed and easy chair for three days, with only as much up-and-around as I could manage if I were pulling along an IV pole.

I am sure that the enforced rest of getting infusions isn't the only benefit I've received from real IVIg, but I think it may be a part of it. So.

I realize most people aren't in my happy position of being able to declare a three-day rest like this. I'm counting my blessings (and recruiting my children).

Abby
Sounds like a great idea. I think a few days of rest can do wonders to MG. As long as you don't use this improvement to fill up for those lost days.
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Old 08-27-2012, 01:44 PM #3
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Be sure to let us know how this works. It seems to me that sleep does more for me than IVIG or mestinon.
Mike
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Old 08-27-2012, 02:19 PM #4
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Sounds like a great idea. I think a few days of rest can do wonders to MG. As long as you don't use this improvement to fill up for those lost days.
Yeah, there will be some catch-up to do...but I've timed this carefully. It's before school starts, and before my college-age kids leave for school. I will parcel out the chores. Anyway, this is an experiment. If it really helps, I will declare un-IVIg days in the future, too.

Abby
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Old 08-27-2012, 02:56 PM #5
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Anyway, this is an experiment. If it really helps, I will declare un-IVIg days in the future, too.
Abby
Mmmmmmmm...............REST!!!!! .....

Simply the most wonderful concept...........Ever!!!!!
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"Thanks for this!" says:
pingpongman (08-27-2012)
Old 08-27-2012, 06:56 PM #6
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It sounds like a good plan anyway. I can't wait to hear how it turns out! I think that it would be nice to declare a 3 day holiday.
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Old 09-01-2012, 08:25 AM #7
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Well, I sure am disappointed in the results of my three-day rest. I'm worse than ever. Of course you never know--maybe if I hadn't rested, I'd be much weaker than I am right now. Anyway, I seem to be back to where I was before I started getting better in May.

Phooey. Well, it was worth a try.

Abby
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