I was diagnosed with ant achr mg, based on this bloodtest.
However, I started reading about anti musk, and wonder if I dont have this rather then anti achr.
First, my first symptoms whererted troubles with chewing and swallowing, smiling and talking, then breathing. Months later the arms, legs, hands joined in, and it wasn't until 2 years after my diagnosis I had m first droopy eye (party, first time MG face!). I read it is typical for achr to start with the eyes, and musk with chewing / swallowing.

Second, I don't get a reaction on mestinon. 3 times 30 mg does the same for me as my usual dosage of 6 x 90 mestinon.

Third, I dont seem to get stable I have it for almost 3 years now, but azathioprin, cellcept, it just doesnt do anything. The prednison (hate it!) saved my life, but Im still feeling very weak. I spend most of my time lying, or in a wheelchair. Most if the times i cant even go on the internet, because my hands are to weak to lift the ipad or type.

Anyway, is it possible to have anti musk, next to anti achr?
And second, what medicine do they try on musk patients?

Thanks.

[alice md]

is it possible to have anti musk, next to anti achr?

yes

And second, what medicine do they try on musk patients?

Good question.

As I wrote elsewhere http://neurotalk.psychcentral.com/sh...748#post912748 MuSK MG is one of the most neglected diseases, so there is no specific treatment for it.

Originally Posted by alice md

yes


Good question.

As I wrote elsewhere http://neurotalk.psychcentral.com/sh...748#post912748 MuSK MG is one of the most neglected diseases, so there is no specific treatment for it.

Thanks much! So I can ask my doctor to test it, but on the other hand if the treatment is the same, what would be the use of it.