I suggest that you read this:

http://jama.jamanetwork.com/article....icleid=1105123

Another thing to think about in a doctor is finding one that weighs risk of a treatment against benefit. I have been to doctors in the past for other conditions that would happily use high risk treatment that did very little good.

I could only access the first page but intriguing thought about conferences. I attend at least one 3 day legal conference every year and for lawyers i would say we get what we put in. Those who go to socialize and climb the inner social ranks do not reap the same educational value as thse who put in the time and work required, as with most things.

Regarding doctor rankings I was Discussing with colleague today how the usa today ranking seemed very similar to ranking system for lawyers called super lawyers. Although i would not personally hire all of the lawyers on super lawyers i can say ffrom personal knowledge, connections are important to being included, but almost all i have ever known that were included are extrremely competent. Whether or not they give their all to all their clients is another story. because i know some that i do not think are so good (i must disclose i am not included in south florida super lawyers which i believe is only because historically i have been more concerned with doing great work than climbing inner circles although admittedly i have to say in past several years i recognized the value of doing so and reaped benefits, fair to say before getting ill i was on fast path to inclusion.

So i am going to say there is no best of the best, especially with MG. i am very happy with my doctors competency and patient relation (albeit he is vey very busy with patients and maintaing leadership position at school). I am going to continue to be aggressively proactive so long as he continues to be receptive to same i think i am waaayyy ahead of the doctors i dealth with from fort lauderdale or miami.

Also, many neurologists will be glad to promise you that with their treatment (and each of them have his/her favorite approach) you will go into complete remission and lead a completely normal life. The question is what have they got to base it on.[/QUOTE]

I would run from a doctor that made that promise! As lawyers we are explicitly prohibited from guaranteeing outcomes, im surprised no such rules apply to doctors.

Funny i am seronegative and have negative emg (most likely becsuse no one told me not to take mestinon) and only slightly abnormal sfemg (both done within hours of taking pills) but my doctor does not seem concerned with that and we are proceeding with what i think is standard first line teatment, mestinon which is helping but not enough, prednisone which hasnt started helping yet and if no help from prednisone after 3 more weeks than we will consider next steps which i think he is thinking plasmapherisis. So all in all it seems to me it would be unreaonable for me to go to someone else for another opinion.

My impression is my doctor w more concerned with excluding other illnesses via the emg, ncs and sfemg.

I have never had a doctor guarantee a cure or even really suggest that it might work. I highly suspect that I am the only MG patient that any of my doctors has treated.

I was taught that as a veterinarian, I was not allowed to guarantee cures. I was told it would get me sued. Then I would need a good lawyer.........

I am worried about the EMG. I have/had RSD in my left foot. I had lots of EMGs in the past and I can tell you they are extremely painful on a limp that has RSD. I am also not sure how the RSD will effect the EMG diagnosis for MG. I hope they will do it on a different limp. What limp do the perform the EMG? With RSD they did it on both legs so they could compare the differences. On my good leg it only felt like a humming sensation, on my bad leg it felt like I had stuck my leg into an electric power generator. I do not look forward to that test but I guess they cannot do a diagnosis without it.
kathie

University of Maryland has a doctor who specializes in MG and a really good surgeon who does thymectomies orthoscopically. Look at their mg webpage for info. Or pm me if you want her name.

Don't judge her based on my current condition as I was recently dx'd w/ SPS which is much rarer and harder to treat.

Great full to find this discussion I found. It was sure what I needed as I consider what to do with My November appointment with a new neurologist at Mayo Rochester. I looked up his bio and all the work I have done since home to give them much better information on me. Dr Geurber who was. A new GP really pushed bad information. She basically used some of the Gaslighting the worst of which was that I didn’t need a pulmonologist. Now the Mayo neuro said my EMG indicated myopathy. He told me all or part of the biopsy info for my mitochondrial disease is missing. The New neuro seems very appropriate in his areas of strength. It’s as if someone actually picked him replacing the ones Ithat were mainly about sleep and oxygen. Someone that cared which I don’t have here at home. There is a medical paper that I found that says some folks need to be off MESTINON up to a week to get a MG result. I know what happens to me after 2 days tho that’s a few years back. I will never forget having 3 nurses and a very unhelpful lift device working so hard to get me up from a toilet of standard height. They absolutely didn’t want to believe I couldn’t pull myself up with my arms. More than anything I really need someone who does not gaslight me. Sculptor 44

My Covid brain is pretty bad so forgive my at times jumbled writing. Sculptor 44