Sorry so tough for you, hope thing improve soon.

There was miscommunication all around this time. The acute team admitted me because I'm so complicated. Then they neglected to inform the neuro team that I was even in the hospital. They didn't even call down as my neuro symptoms got bad, even though thats why they admitted me in the first place. My neuro told them the day after I was supposed to be be discharged because I emailed her the situation when they decided to keep me another night for observation. I'd also been telling every doc left and right that I'd been diagnosed with apnea, but it wasn't until the last night that one of the docs suggested trying the BiPAP machine, but then that never happened.

My neighbor said I kept him up all night snoring and choking. I apologized, but he said he heard me arguing with the doctors and nurses about getting the BiPAP so he know I couldn't haven't have done anything about it, sounds like he was more worried about me than anything else. Except he did tell his nurse that they put him in the same room as a jet engine :(

I was right outside the nurses station, so they must have heard it if it was as bad as he claimed. I've got all my consults lined up for next week, including the follow-up from the second sleep study with BiPAP; so I'm really trying to stay positive and hope things improve, but as things drag on its getting really hard.

What really annoyed me though, was one of the residents on the last day told me I'd been there too long for a simple urinary retention issue and unless the neuro team had some kind of "magic trick" to improve my walking, I'd need to leave today. In hindsight I should have complained; she could have simply told me I was on the wrong ward and the neuro team would be by to evaluate me as to whether they could help me or treat me as an outpatient. :mad:

I had similar type experience at hospital, doctors and residents acting more like the three stooges. When i realize that is going on, I have learned to just get away from those people because no amount of complaining will ever get them to admit they are not the brilliant and amazing doctors they think they are!

Good luck finding some more competent assistance.

Very sad and true.

My time on the neuro ward has actually been very good. They have patients that come back every month for IVIG, so they realize things can become chronic. The acute ward just seemed clueless. They first said they don't keep people for urinary retention, but I'm too complex to send home--if thats the case, then call or consult the doctors who've been treating me!

Then the neuro symptoms got bad and they ignored them and told me I was ready to go. When I told the nurse i wasn't leaving without seeing a neurologist, they brought up the acute doctor on call (who was probably the only competent one of the bunch), who said they'd never let a patient go in that condition and I'd see a neurologist in the morning. My nurse at the time said I shouldn't be too concerned about the walking, all I'd need is a couple weeks of physical therapy and I'd be good as new.

I found it a little comical that my neighbor was brought in and could walk, but with a little difficulty, yet they put a high fall risk sign on the door for him and made sure he had a walker. Yet I was barely moving, but because the issue I was brought in for had nothing to do with my legs, they didn't bother getting me a walker or declaring me a fall risk (I don't like being called one as it means all sorts of restrictions, but between the two of us, the odds of my falling were greater).

I did manage to snag a walker with the help of a nurse from the next station as she saw me stumbling between wall railings and told me to wait where I was while she located one--so I think I was just in a bad section in general.

At least now I know if I'm ever admitted again I need to ask if they can place me on the neuro floor (or at least make sure the neuro team knows I'm there and makes arrangements for me. I just assumed that my normal team would be contacted--especially since I considered the bladder problem a neuro issue to start with).

I think the acute team was annoyed that I was still there the next morning after they had discharged me, which is why the resident with the snooty attitude came in. I'm debating complaining to my neuro about the whole experience--I never wanted to be readmitted, but once I was they should have treated me properly.

One last anecdote. The nurse I had the night nurse assigned to me saw I had all these chronic illnesses and asked how I was dealing with them the first night I was in--I started to talk with her, not realizing she had an agenda. Then she asked if I was getting any help from religion. I told her that I wasn't a very religious person anymore and she went into a spiel about how I wouldn't get better if I didn't believe and let G-d in, then asked if she could send up someone I could talk to.

I don't like people prying into my business like this to start with, but put up with it if its someone close to me like family or my home-infusion nurse (who may as well be family and credits G-d with saving her life when she had cancer that should have been fatal), but I played dumb here and asked if I could speak with a psychologist. She said, "No, I mean can I send up someone to talk to you about religious counseling." I first started to say no, then said, "Alright, could you send a rabbi up to speak with me." At this point she seemed taken aback and said she'd see what she could do. She never called for the rabbi, or brought up religion again. I guess if I wasn't going to pray to the right god, she wasn't going to help me find religion again. :rolleyes:

Sounds like you are getting all kinds of attention.........
(Some better than others.)
I hope you get better.