as you know, i'm not a confirmed MG diagnosis, but my symptoms started with my eyelids.. and then shortly thereafter my entire face.... I remember at one point my face felt funny.. and I looked in the mirror and thought I may have had a stroke (my right side is more affected than left)... after a few weeks or months (it's all a blur) of having symptoms- it was then generalized.. i was so upset by it all and dr's telling me it was stress (ugh).. that I was wiped out one night and started to cry.. only that my face wouldn't even make the "cry face"!!!! which upset me even more haha.. when my symptoms are at a flare, i have this ugly snarl even when I'm smiling or laughing hard, and I used to have a quite animated face!!!

On another note- cooler weather is on it's way here - yesterday (3 days post IVIG) I woke up breathing my easier.. and we were outside at a fair all day- once we got home and my husband was talking about how exhausted he was, and i was feeling great - i realized.. hey no double vision all day, my eyelids weren't droopy and I smiled all day without that tired muscle feeling and fr the first time in months no melting face in the weather!! YAY for fall!!!