Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 09-30-2012, 08:50 AM #1
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default Ptosis? or something else?

Iīve had this very rarely and it surprises me that it should come at the end of a progression of myasthenic muscle sets to be involved and not at the beginning.

The left eye lid will droop just a little – itīs definitely mild, but it feels like more than just the eyelid is affected – around the cheek and eyebrow seem involved as well. One side of the face feels a bit like night and the other like day. I know itīs not a stroke as itīs fluctuating and will go away with a cooler breeze/change to a cooler room.

Does ptosis affect a larger area than just the eye itself?

Thanks

Anacrusis
Anacrusis is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
seishin (03-01-2013)
Old 09-30-2012, 09:45 AM #2
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
10 yr Member
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
10 yr Member
Default

Sounds like you are experiencing facial weakness in addition to ptosis. They commonly go together.

Sorry. `
4-eyes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Anacrusis (10-02-2012)
Old 09-30-2012, 10:08 AM #3
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default

Quote:
Originally Posted by 4-eyes View Post
Sounds like you are experiencing facial weakness in addition to ptosis. They commonly go together.

Sorry. `
I canīt believe it! It started at a party a couple of days ago after standing on my feet too long!

Thanks for answering so quick
Anacrusis is offline   Reply With QuoteReply With Quote
Old 09-30-2012, 10:32 AM #4
RavenC
Guest
 
Posts: n/a
RavenC
Guest
 
Posts: n/a
Default

Quote:
Originally Posted by Anacrusis View Post

The left eye lid will droop just a little – itīs definitely mild, but it feels like more than just the eyelid is affected – around the cheek and eyebrow seem involved as well. One side of the face feels a bit like night and the other like day.
Dear friend, well, thats exactlt what always happens to my face! Ptosis never comes alone here, I always have ptosis (1 side way more visible then other) accompanied by weak cheeks and no expression. Most of the time it's one side thats looks almost normal, the other side is weak and weird (stroke like).
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Anacrusis (09-30-2012)
Old 09-30-2012, 11:17 AM #5
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default

Quote:
Originally Posted by RavenC View Post
Dear friend, well, thats exactlt what always happens to my face! Ptosis never comes alone here, I always have ptosis (1 side way more visible then other) accompanied by weak cheeks and no expression. Most of the time it's one side thats looks almost normal, the other side is weak and weird (stroke like).
Does yours feel a bit numb on the affected side and like something is pulling on the cheek (thatīs the only way I can describe it I think)
Anacrusis is offline   Reply With QuoteReply With Quote
Old 09-30-2012, 11:59 AM #6
southblues's Avatar
southblues southblues is offline
Member
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default

I don't feel anything with my ptosis. If it is severe enough it will obstruct my vision. Other than that, I can only tell that I have it by looking in the mirror. Well that and by noticing that people are staring at my eyes and then they look away when I notice....
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Anacrusis (10-02-2012)
Old 09-30-2012, 12:25 PM #7
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default

Quote:
Originally Posted by southblues View Post
I don't feel anything with my ptosis. If it is severe enough it will obstruct my vision. Other than that, I can only tell that I have it by looking in the mirror. Well that and by noticing that people are staring at my eyes and then they look away when I notice....
OK thanks So no sensation - good to know....
Anacrusis is offline   Reply With QuoteReply With Quote
Old 10-01-2012, 09:36 AM #8
RavenC
Guest
 
Posts: n/a
RavenC
Guest
 
Posts: n/a
Default

Quote:
Originally Posted by Anacrusis View Post
Does yours feel a bit numb on the affected side and like something is pulling on the cheek (thatīs the only way I can describe it I think)
Well, I dont really feel the ptosis, I only know because I just see a little less or because I see myself in the mirror (or someone says, what are you doing?)
But because its always accomplied by weak facial muscles overall, cheecks, lips, etc, I do feel it. Because it feels.... I dont really know how to describe it. Something between thight, heavy, unmovable, weird, like my face is going to fall off a bit. Like Im wearing a mask, kind of.
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Anacrusis (10-02-2012)
Old 10-01-2012, 10:40 AM #9
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default

Quote:
Originally Posted by RavenC View Post
Well, I dont really feel the ptosis, I only know because I just see a little less or because I see myself in the mirror (or someone says, what are you doing?)
But because its always accomplied by weak facial muscles overall, cheecks, lips, etc, I do feel it. Because it feels.... I dont really know how to describe it. Something between thight, heavy, unmovable, weird, like my face is going to fall off a bit. Like Im wearing a mask, kind of.
That really is an EXCELLENT description...Thanks and - see you soon
(Your mood is still hungover???!!!!)
Anacrusis is offline   Reply With QuoteReply With Quote
Old 09-30-2012, 12:35 PM #10
cait24's Avatar
cait24 cait24 is offline
Member
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default

Quote:
Originally Posted by Anacrusis View Post
Iīve had this very rarely and it surprises me that it should come at the end of a progression of myasthenic muscle sets to be involved and not at the beginning.

The left eye lid will droop just a little – itīs definitely mild, but it feels like more than just the eyelid is affected – around the cheek and eyebrow seem involved as well. One side of the face feels a bit like night and the other like day. I know itīs not a stroke as itīs fluctuating and will go away with a cooler breeze/change to a cooler room.

Does ptosis affect a larger area than just the eye itself?

Thanks

Anacrusis
I occasionally get a little tingling and decreased sensation on the one side of my face with ptosis but it is rare. But all the muscles on the one side of my face seem a little droopy. I only have dimples on one side of my face!
kathie
cait24 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Mestinon & Ptosis wilke01 Myasthenia Gravis 0 04-28-2012 03:01 PM
ptosis tips? Stellatum Myasthenia Gravis 3 10-29-2010 07:07 AM
MG and eyebrow ptosis? Lindie09 Myasthenia Gravis 10 10-07-2010 09:36 AM
Ptosis / and lots of other stuff.....sorry rach73 Myasthenia Gravis 28 03-01-2010 08:56 AM
Droopy Eye lids / Ptosis rach73 Myasthenia Gravis 8 07-30-2009 03:43 AM


All times are GMT -5. The time now is 10:45 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.